Life in the Grey – a Column by Bailey Anne Vincent

breaking up, doctor mistakes, mask, body image, walk, pre-existing condition, perspective, slowing down

Bailey is a Deaf 34-year-old with atypical cystic fibrosis. She has been a journalist, columnist, and novelist for almost two decades, but is also an altruist, feminist and narcissist who likes to ask for “fatty sushi” that’s not on the menu (it’s cream cheese, egg and avocado, respectively). She is artistic director of the body-positive dance company Company 360 in Virginia, as well as a professional dancer, choreographer, and homeschooling mother of two girls. As a formally misdiagnosed mutant, she hopes to raise awareness of atypical CFTR disease and help anyone who isn’t genetically in the black or white feel less alone. For more on her activism or art, please see www.catchingbreaths.org.

I Found True Love With My Husband’s Best Friend

My friend wrote a column about me and it goes like this: “Have you ever sat and actually stared at the sky, following a cloud, watching it transform and dissipate? Have you ever seen a flower wilt in decay? Have you ever felt so physically miserable that you actually had…

Let’s Adapt the Word ‘Adaptive’

“I need to change my language.” I said this to my rehearsal director the other day after realizing I said the word “adaptive” again. “I hate the word adaptive,” I kept saying with increasing intensity. “It denotes that something is more and something is less.” In dance, we use the…

Trust Me, You’re Too Good for This Column

“How do you keep going?” This is a question I know all too well. I’m not sharing this question in the same way that my eldest daughter “complains” about her extra-long eyelashes. (Like, we get it. It’s so hard.) I’m sharing this because sometimes sharing is all we can do…


Featured Column

How I Discovered That PTSD Was Causing My Post-transplant Struggles

PTSD, mental health, communities, stress, grateful, work, trauma, rare disease day, transplant, CF community, National Blood Donor Month, birthdays, holidays
Columnist Lara Govendo addresses an issue that several readers may relate to: post-transplant PTSD, which can wreak havoc.

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