Some patients suffering with CF are celebrities or became celebrities due to their fight against the disease. Learn more about Charles Michael Duke and his Wait for a Lung Transplant. In this video by Alt Shift X watch “a visual explanation of lung transplants.”…
In this amazing video, listen to Annie Elainey talk about invisible illnesses and how misleading it can all be. Learn more about how to live with cystic fibrosis. “You are here to find out what are those clues you…
What is CFTR? 1. Cystic fibrosis transmembrane conductance regulator (CFTR) is a gene that regulates the production of a protein which works as a channel for the membrane of cells in the body that create mucus, saliva, sweat, tears and digestive enzymes. 2. This conductor leads negatively charged particles, known…
Cystic Fibrosis Foundation Follow them here. Learn more about how the Cystic Fibrosis Foundation marked ‘CF Awareness Month’ with Rockefeller Center window display. The Clairity Project Follow her here. Learn more about these 9…
In this Gifted Life video, learn some hospital hacks that might come in handy for a possible next admission (hopefully not ever). Learn more about how to live with cystic fibrosis. “To everyone who is currently in a hospital bed, I hope you are all out of there…
Your response to our 16 cystic fibrosis tattoos list was amazing, and we started getting photos of some of your tattoos also. They inspired us, so we decided to share them back with you. (source: https://bit.ly/2aNrTua) (source: https://bit.ly/2aNrTua)…
In this FOX 13 News – Tampa Bay video, meet Christopher Carmen, a spunky 5-year-old with cystic fibrosis (CF). Learn more about how to live with cystic fibrosis. Because his disease required many absences from school, his family decided to teach him…
Here are six organizations doing remarkable work either in cystic fibrosis research or with CF patients and their families. You can help any of the groups directly or help raise awareness for them. Cystic Fibrosis Foundation (CFF) “The Cystic Fibrosis Foundation is the leading organization committed to finding new therapies…
In this Cystic Fibrosis Foundation video, watch and hear college students with cystic fibrosis (CF), and their clinicians and parents, talk about how to manage the transition from high school to college. Learn more about how to live with cystic fibrosis. Also, learn…
1. The United States has the highest incidence of cystic fibrosis. 2. According to the Cystic Fibrosis Foundation (CFF), each time two genetic CF carriers have a child together, the probability of the child having CF disease is one in four of the offspring. Learn more about how…
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