Throughout the decades, numerous institutes, centers, and organizations have enabled key research achievements. Among them is the National Heart, Lung, and Blood Institute (NHLBI), which is part of the National Institutes of Health (NIH) and “is strongly committed to supporting research aimed at preventing and treating heart, lung,…
After waiting for a year, Carrie Giddens has received a much needed lung transplantation. Carrie, who is married to Craig Giddens, suffers from cystic fibrosis (CF) and, like many other CF patients, a lung transplant was her only option. Now, Craig has decided to write a letter to the…
In this The Frey Life video, here’s Mary talking about her cystic fibrosis experience directly to kids going through the same. “If you’re a kid with cystic fibrosis or are a parent of a CF kid, Mary wants to encourage you to keep doing…
If you are one of the 15,000 adults aged 18 or older living with cystic fibrosis (CF) in the United States, we might have a big announcement for you. AbbVie, a global, research-based biopharmaceutical company formed in 2013 following separation from Abbott Laboratories, recently announced…
“Can’t See Sh*t” is a documentary which tells the story of Brendan Patrick, a cystic fibrosis patient who lost his sight due to complications with CF and medical ailments. “An artist loses his sight and gains vision. He is able to overcome his illness and build a new career while laughing…
Get to know Angela DeStasio‘s story and fight with her invisible illness: cystic fibrosis. “Cystic fibrosis is classified as an invisible disease, which means I look fully functioning but on the inside, a lot of things are going on.” To learn…
In this Cystic Fibrosis Trust video, learn more about how researchers at London’s South Bank University are looking into whether the Chinese flow exercise improves breathing for people with cystic fibrosis. “Early reports show it can help breathing and improve physiotherapy.” To learn more about cystic fibrosis, click…
In this Informing Families Building Trust video, listen to four parents sharing their perspective of having a child with a non-visible disability and their wish to erase the stigma perpetuated by society and professionals. To learn more about cystic fibrosis,…
https://www.tumblr.com/cf-vs-everest/144406773599/thought-i-would-skip-straight-to-pic-number-6-i Remember Nick Talbot, the amazing 40-year-old man living with cystic fibrosis who was attempting to climb Mount Everest? Well, he just became the first person with CF to ever climb the tallest mountain in the world. See his first words about it above. To learn more about…
https://www.youtube.com/watch?v=FrfWMg4_Ol0 Last week we introduced you the Our Cystic Fibrosis Journey channel where some of your favorite youtubers will now share their cystic fibrosis stories with you. Last week’s theme was “Port Vs Picc Line”. Here are Larry Brian’s thoughts on the subject. To learn more about cysticf, click here:…
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