Last week’s hot topic on Cystic Fibrosis titled Despite Cystic Fibrosis, or Perhaps Because of It, Woman Fulfills Her Wish List ‘One Day at a Time’ was written by Leonor Mateus Ferreira. The article is focused on Sandi Alvaro, a young West Virginian who has lived with cystic fibrosis (CF) her…
Social Clips
In this “Real Talk” on the Cystic Fibrosis Foundation channel, watch “Expectation vs. Reality: What We Were Told” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…
https://youtu.be/uiVuPRsDxOU Ella Rose shares her experience with cystic fibrosis (CF) giving some useful tips on how to get a few extra calories in. Wanna take a peek at her refrigerator? Learn more about CF here:Â https://bit.ly/1nOGoQ2…
Meet Claire and her family and listen to her personal story of life with cystic fibrosis (CF) up to 2010. Keep up to date on all CF news https://bit.ly/1nOGoQ2…
The music track and video ‘Breathe – Life Unlimited’ features over 200 unique sampled breaths from around 30 people living with CF and celebrities. The idea by the Cystic Fibrosis Trust is to highlight the struggle for every breath, every day. Recently, the Cystic Fibrosis Trust also helped launch…
https://www.youtube.com/watch?v=Sdg40cjoDmo In this video by Ron Parida, meet  Caleigh Haber, who, “3 months ago, was given new life via a double lung transplant after battling cystic fibrosis her whole life. With the surgery now behind her, Caleigh was left with a massive scar going down the middle of her chest, something…
In this video from the University of Alabama, Birmingham, meet 14-year-old cystic fibrosis patient Angelynn Luckado and her mom and find out about her transplant story. Read more on cystic fibrosis here: https://bit.ly/1nOGoQ2…
https://www.youtube.com/watch?v=4pduFhlaVAg Watch Fred Somm explain what cystic fibrosis is and what it represents to him. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…
Watch this video for the Cystic Fibrosis Lifestyle Foundation featuring founder and executive director Brian Callanan. “Exercise is one of the best medicines for those living with CF, and CFLF funds recreational grants to make that possible. This video is focused on one of their fundraising events, Knockout CF held…
In this video, watch Tiffany Rich answer some Q&A about her life with cystic fibrosis. “My name is Tiffany Rich, and I am a 26-year-old living with a life-threatening disease called cystic fibrosis. I am currently listed on the double-lung transplant list and decided to document my journey while I wait…
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