Holly, 22, suffers from cystic fibrosis. Her life expectancy is  only to 25 to 30-years-old without a double lung transplant. Will Holly get her call and a ‘second chance at life’? This short documentary film by Emily Mitchell and Jess Pardoe follows Holly Van Geffen and her battle with cystic fibrosis while…
In this UK Channel 5 video, meet “Holly, who received a double lung transplant earlier this year and features in episode two of the Gift of Life series. She took to the streets of London to raise awareness about organ donation.” To learn more about cystic fibrosis,…
In this video watch Miranda Porche’s health update on her 6th month of taking Orkambi. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest Orkambi news here: https://bit.ly/1RlPwnh…
In this video from the Cystic Fibrosis Trust, watch the actor and voice over artist Simon Greenall (Alan Partridge, Monkey Dust and Compare the Market adverts) talk about why he supported the Cystic Fibrosis Trust by raising money on Celebrity Mastermind. To learn more about cystic fibrosis, click…
In this video from the Cystic Fibrosis Foundation, learn why people ‘Stride for Cystic Fibrosis’. “Lace up. Walk. Cure CF.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…
In this video from the University of Queensland, learn how Elliot and Jeremy are creating a change for people with cystic fibrosis by making breathing exercises a different experience. “To us, the ultimate goal of being an engineer is applying technology to make the world a better place”…
In this video by dailyRx, learn about how “successful pregnancies with cystic fibrosis are possible.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Read the latest pregnancy and cystic fibrosis news here: https://bit.ly/1RrGLdD…
In this video by Gifted Life, watch #7 Ill-founded Excuses to NOT Become an Organ and Tissue Donor. “If you are against becoming an organ and tissue donor that is completely fine. However, if you don’t have a good excuse you might look like a selfish douche bag because people…
Read the Articles Here: Cystic Fibrosis Bacteria, Recently ID’d, Spread Among Patients at CF Center Orkambi (lumacaftor/ivacaftor) For Cystic Fibrosis Vertex, CRISPR to Use Gene Editing in Search for New Cystic Fibrosis Treatments…
Emily’s Entourage raises money and awareness to help find a cure for rare mutations of cystic fibrosis. It started as a small-scale fundraiser for a local cystic fibrosis stair climb by a group of people who love Emily and are desperate for a CF cure. Now they’re mobilizing friends,…
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