Watch this 3 month check in on Orkambi from the channel Me and Orkambi. Learn all about Orkambi (lumacaftor/ivacaftor) here: https://bit.ly/1jCoQUT If you wish to learn more about Cystic Fibrosis click here: https://bit.ly/1QltnFs…
Social Clips
This video from the Cystic Fibrosis Trust features “real stories to help parents come to terms with their child being diagnosed with cystic fibrosis.” To learn more about Cystic Fibrosis enter here: https://bit.ly/1QltnFs Stay Updated with all the latest news here: https://bit.ly/1jNDqsz…
Read the Articles Here: Orkambi (lumacaftor/ivacaftor) For Cystic Fibrosis Pulmonary Function in CF Improves with High Frequency Chest Wall Oscillation Fungus with a Defense Against Bacteria Observed in Cystic Fibrosis Study …
Seven year old Ruben Forsythe met diving superstar Tom Daley at the Irish Open Diving Championships! pic.twitter.com/BfFMlAZGCZ — Sportsfile (@sportsfile) November 14, 2015 According to Sportsfile, it was a dream come true for Ruben Forsythe to meet his hero at the Irish Open Diving Championships.
In this video from the Boomer Esiason Foundation, meet Gunnar Esiason, here when he was 19 years-old, who has been living with cystic fibrosis. While a sophomore majoring in English at Boston College, Gunnar was physically active in intramural sports, worked at being compliant with his treatment regimin, and…
Meet Zack DeBaltzo, coach and athlete at CrossFit Apogee in Gibsonton, Florida. He is also living with Cystic Fibrosis. “I work out with oxygen,” DeBaltzo says, “and coming out here to the field for the first time, Don immediately approached me and was like, ‘Hey, man. What’s…
Watch YouTuber Charles Michael Duke, who was asked by “the Cystic Fibrosis Trust to take over their social media for the day, talk about how to tell someone you have Cystic Fibrosis.” To learn more about Cystic Fibrosis click here: https://bit.ly/1QltnFs Stay updated with all the…
Read the Articles Here: Novel Pseudomonas Aeruginosa Treatment For CF Picks Up Key FDA Orphan Drug Designation Orkambi (lumacaftor/ivacaftor) For Cystic Fibrosis Study Finds Gene Therapy Promising Candidate For Cystic Fibrosis Treatment …
In this video from the Cystic Fibrosis Lifestyle Foundation, see the stories of Cale, Della, Max, Auburn and Jude talking how they keep living despite having CF. Learn more about cystic fibrosis here: https://bit.ly/1MTSxuh…
According to the Cystic Fibrosis Foundation, It is vital to ensuring and maintaining health insurance coverage for people with cystic fibrosis. Health insurance can be complicated and expensive, but the CFF helps CF’ers manage their plan, make the most of coverage and find ways to pay…
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