Meet Morgan Grindstaff, also known as Cystik1. He is 25 years and has been battling Cystic Fibrosis. Listen him recite a strong and emotional spoken word piece about his struggle. Also, if you would like to watch him document his Orkambi Journey, see the video below. Learn…
Watch Dr. Michael P. Boyle, Vice-President of Therapeutics Development in the Cystic Fibrosis Foundation, talking about Orkambi and what comes next. Learn more about Orkambi here: https://bit.ly/1jCoQUT Read all the latest news about Orkambi here: https://bit.ly/1RlPwnh…
Read the Articles Here: Orkambi (lumacaftor/ivacaftor) For Cystic Fibrosis Female Fertility Issues in Cystic Fibrosis Highlighted in New Study Mucus in Cystic Fibrosis Lungs May Be a Disease Biomarker…
This is Miranda Porche, CFer and Youtuber who has been documenting her journey taking Orkambi. Check out her first video she made and follow her Orkambi playlist here: https://bit.ly/1MMzgy6 Learn all about Orkambi (lumacaftor/ivacaftor) here: https://bit.ly/1jCoQUT Follow the latest news on Orkambi here: https://bit.ly/1RlPwnh…
In a video from the Cystic Fibrosis Foundation, watch another way to explain to your children what Cystic Fibrosis is. To see the first video, click here: https://bit.ly/1OlVSFN If you wish to learn more about Cystic Fibrosis enter here: https://bit.ly/1QltnFs Cystic Fibrosis News Today is…
Eva Markvoort was a young woman who blogged about her fight with cystic fibrosis. At the age of 25, Eva passed. Despite that, Eva left behind a documentary – 65_RedRoses – where you can be inspired by her strength and get to know part of her struggle…
In this video from The Living Breath Foundation, we meet CFer Melissa. She shows us how the ocean and physical exercise has helped improve her life. Her starting lung function was 36% and it rose to 41% though exercise and surfing. Learn how she did it…
In this video from the Cystic Fibrosis Foundation, learn about what motivates Jessica to participate in clinical trials. Learn more about CF Clinical Trials here: https://bit.ly/1j4TxSt…
“I couldn’t change the fact whether or not I was in pain but I could choose whether or not to suffer” says Adam Young, also known as the CF Dancer in a TEDx event. Watch the video to lean how he learned to…
Here’s a different way to explain to your children what Cystic Fibrosis is. If you wish to learn more about Cystic Fibrosis enter here: https://bit.ly/1QltnFs…
Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.
Get regular updates to your inbox.