Valiant Voice – a Column by Lara Govendo

I knew life would be different after my double-lung transplant three years ago, but I didn’t expect it to feel like a completely new life. The change has been intense. I feel like I barely have cystic fibrosis anymore. Feeling disconnected from the CF world has been an interesting…

Sometimes stress turns me into someone that I’m not. I’m never proud of knee-jerk reactions and am always looking to improve my coping skills. It’s a constant balancing act I haven’t mastered quite yet. Life with cystic fibrosis is stressful, and a double-lung transplant added another level of stress…

I talk about my life with a double-lung transplant regularly. Sharing the double-edged sword of transplant during National Donate Life Month may help others see how this life can be bittersweet. There are highs and lows and seasons of struggle and victory, each one powerful in its own way.

Our vulnerabilities should be celebrated, but they seldom are in the workplace. Hiding our disabilities may feel like the only solution at times. After losing my previous job, I never thought I’d get another interview, let alone be hired again. It’s been five years since I’ve been active as…

March is a heavy month. Like clockwork, physical and emotional symptoms seem to erupt out of nowhere. Four years ago this month I almost died. On an unconscious level, our bodies remember the trauma we’ve endured. March 2017 was the most difficult month of my life. I’ve never fought…

“You have stage 3 kidney disease,” the doctor told me. I remember that first appointment with my nephrologist as a blur. Choking back tears, I took in the news with trepidation. I wasn’t prepared for this world of newly discovered health problems. Yet there I was, three weeks after my…

All of us who are affected by cystic fibrosis have our own unique experiences. No two stories are the same, let alone our genetic mutations. Taking it to the next level and looking deeper into what makes us who we are is risky, but necessary. Sharing the most vulnerable parts…

It’s been three and a half years since I “chose” life through a double-lung transplant. Life-and-death decisions rarely are black and white. The path to making my decision wasn’t linear; it was a journey to wrestle through, devoid of clear-cut answers. I hope this column will help those on…

Two of the most powerful words in our vocabulary are “me, too.” Many of us tend to isolate ourselves when our circumstances are challenging. We turn inward rather than outward because we feel shame about what we’re going through. When we find that person or group of people that gets…

Hearing the words “blood transfusion” still sends chills down my spine. The emotional response my entire body felt when I heard those words for the first time from a doctor is still traumatic. “I wasn’t supposed to get one of these,” I thought. I had just had a double-lung transplant…