Valiant Voice – a Column by Lara Govendo

For many years, I’ve had to endure the ongoing praise for life-changing cystic fibrosis (CF) medications. Let me explain. CFTR modulators like the most recently approved drug Trikafta (elexacaftor/tezacaftor/ivacaftor) have completely changed the way that many patients address the chronic challenges of CF. I’ve watched…

I would have died without a double-lung transplant. Those words still send chills down my spine. It’s surreal that my story could have turned out differently. I try not to dwell on it, but sometimes my eyes sweat with emotion while reflecting on that truth: I was dying…

As a person with a disability, I’ve been perceived as different and treated that way. This treatment has taken various forms during the seasons of my life, depending on when my disability was visible. I’ve been misunderstood, misrepresented, and mistreated in all kinds of arenas, and I want to set…

A recent hospitalization for appendicitis reminded me too much of frequent hospital stays in the past. As memories infiltrated my thoughts, the traumatic ties to the past bubbled to the surface. It’s important to name and process our experiences since medical trauma compounds with chronic illness. Prior…

I live with some level of pain and nausea on the regular. I’ve become numb to these symptoms because I’m used to them, but that’s sometimes a problem. A few weeks ago, I had intense nausea and belly pain. It seemed normal, given my cystic fibrosis (CF),…

Prior to my double-lung transplant in 2017, I was scared of the words “palliative care.” I mistook it for hospice care and thought it meant preparing to die. I was hypersensitive about that because I was waiting on the organ transplant list. If I had known then…

I had an identity crisis when I turned 30. At the time, everything that had previously defined me — my health, my job, my financial independence — had been stripped from me. It felt like the rug had been pulled out from under my feet. Most 30-year-olds aren’t writing out…

Since I had a double-lung transplant six years ago, my life has been a sea breeze compared with my life with lungs affected by cystic fibrosis (CF). Since everything seems easier now, I often forget that I still can’t handle everything on my own. I continue to need…

“I don’t understand how you were laughing when all I wanted to do was cry,” my sister said, referring to the time before my double-lung transplant six years ago. In March 2017, I went into respiratory failure due to complications of cystic fibrosis (CF). I was transported to…

Living with cystic fibrosis (CF) and transplanted organs has taught me a great deal about how to successfully travel by air with a chronic illness. While my medical needs look significantly different now than they did before my double-lung transplant six years ago, all of my health…