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Family and caregivers: what do you wish you had known about CF?
Hello, CF community!
People living with CF often think about how this disease impacts family members and caregivers. For the caregivers here, I am sure you’ve had to do a lot of learning and adapting throughout your CF journey.
What resources may have helped you? Did any doctors or specialists do anything to help you as a caregiver? What have you since discovered that would have been fantastic to know back then?
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2 Replies
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While this may not answer the question directly, I wanted to share a wonderful CF organization focused on spouses: https://www.projectcfspouse.org. Active on all major social media platforms, they frequently share insightful articles and podcasts. Founded in 2016, Project CF Spouse is dedicated to providing resources and support to spouses and partners of individuals with cystic fibrosis.
projectcfspouse.org
Project CF Spouse is a nonprofit organization that is dedicated to providing resources and support to CF spouses and partners in the CF community.
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Thanks for sharing!
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