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31 Days of CF 2022
Cystic Fibrosis News Today’s 31 Days of CF campaign will publish one story per day for Cystic Fibrosis Awareness Month in May. Follow us on Facebook and Instagram for more stories like this, using the hashtag #31DaysofCF, or read the full series.
- 30
- 10 months ago
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Coronavirus (COVID-19) and CF
This forum is for discussing the Coronavirus pandemic, and how it coincides with cystic fibrosis. Ask questions, share tips for self-isolation, etc. Keep in mind that Cystic Fibrosis News Today is not a resource for medical advice. However, we can share news stories and patient and caregiver perspectives.
- 72
- 2 months, 3 weeks ago
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Friends and Family of people with Cystic Fibrosis
Friendships are an enormous part of our lives. They're both a support systems and an escape from reality. This is a space for friends and family members of people with CF to discuss their concerns, thoughts, questions, or whatever else would be a good, welcoming place.
- 18
- 3 months, 2 weeks ago
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Man Crush Monday
Each week through our Instagram we feature a MCM. Check them out here and what they have to say about THEIR story with CF.
- 16
- 1 year, 8 months ago
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Trikafta: Triple Combination CFTR Modulator
A place to discuss hopes, expectations, and personal experiences with the long-awaited triple combination drug from Vertex.
- 33
- 2 days, 8 hours ago
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Women Crush Wednesday
Each week through our Instagram we feature a WCW. Check them out here and what they have to say about THEIR story with CF.
- 22
- 1 year, 7 months ago
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Adults With Cystic Fibrosis
This is open to any Cystic Fibrosis individual 18 and older. Here is where people can find information about anything from entering the workforce to living independently.
- 1,019
- 20 hours, 53 minutes ago
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31 Days of CF
This forum is for sharing stories from our 31 Days of CF initiative. In recognition of CF awareness month in May, we’re sharing a diverse range of stories from people in our community. Follow us on Facebook and Instagram for these stories, using the hashtag #31DaysofCF, or go here to see the full series.
- 22
- 1 year, 9 months ago
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CF Science and Research
This forum is for discussing CF research and development. Ask questions about clinical trials, treatments, etc.
- 300
- 10 months, 2 weeks ago
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Cystic Fibrosis and Dating/Relationships
This is a forum for Cystic Fibrosis individuals to discuss dating, relationships and, marriage.
- 13
- 1 month, 1 week ago
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Cystic Fibrosis Resources
A resource list of organizations that are potentially useful for people with CF and their families.
- 14
- 1 month, 3 weeks ago
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Introductions
Hey, we're your Forum Moderators, Jenny Livingston and Bailey Vincent! We both have CF and have made formal introductions in the threads below. But, we want to know a little about you and your story with CF -- so go ahead and make a brief (or novel!) introduction!
- 12
- 10 months, 2 weeks ago
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Using our forums
This forum provides help regarding the use of our forums.
- 3
- 3 years, 2 months ago
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Treatment routines, medicines, and the like
A space to talk about medications and therapies that are working for you, and some that you'd like to bring up with your doctor.
- 58
- 8 months, 2 weeks ago
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Going To College When You Have Cystic Fibrosis
Whether people commute from home or go to a university states away from where their parents live, this is a place for Cystic Fibrosis college students to share tips and ask each other questions.
- 9
- 1 year, 4 months ago
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Diagnosis Information and General Questions
This forum is designed for newly diagnosed patients and parents/caregivers who are looking for information about where to start in their Cystic Fibrosis journey. Here is where people can ask basic questions about Cystic Fibrosis and sort of help each other through the initial diagnosis stage.
- 27
- 2 weeks, 5 days ago
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CF and Depression and Anxiety
With all the turmoil that comes with having a chronic condition like cystic fibrosis, depression and anxiety aren't uncommon for people with CF. Come to discuss different methods of coping, therapy, medications, or just vent.
- 22
- 7 months, 3 weeks ago
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31 Days of CF 2022