-
Advocating for the CF community
In my most recent column, I wrote about the many rapid changes within the American healthcare system and the problems these present for disability communities.
Whether you’re an American or not, what do you wish lawmakers understood about your needs and the wider CF community? How do you advocate for yourself and others?
-
2 Replies
-
I wish lawmakers were more attentive and caring to the simple fact that access to proper healthcare is survival for all people with CF. It is sickening to think of how people with CF, as well as many other groups, slip down to the bottom of the list for funding and access. This is why CF advocacy is so crucial. Making voices heard, seeing the faces of those with CF, understanding the stories of their caregivers and loved ones, raising awareness and fundraising until a cure is found is everything.
-
Unfortunately, it seems like the big beautiful bill may cut a lot of funding for research and medicaid. Hopefully, people will soon realize how damaging it will be.
-
Log in to reply.