• Patti Rowland posted an update 4 months ago

    does anyone else feel like all CF patients are just given a standard treatment plan regardless of the progress or lack thereof, of the patient?
    Is everyone else kept on a daily, no break from inhaled antibiotics no matter the PFT number, weight and current health of the patient? Even when the sputum samples are clear?

    • Patti, yes. This is definitely something I’ve been frustrated with in the past. However, I found that in some cases, I’ve been able to initiate a discussion about these things with my care team, leading to a change in routine or medications. I feel very lucky to have a team that is is so willing to work with me to find the best care plan for ME, individually.

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