canadian-cf-dad
Forum Replies Created
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canadian-cf-dad
MemberJune 8, 2021 at 4:09 pm in reply to: Trikafta – Expect more benefit than just to mucous and sweat, lungs and gut.Thanks you for that Jenny:). Our prime minister, Justin Trudeau, is a poser, more concerned with his appearance and world stage presence and reputation vs taking care of health care in Canada. if international pressure was put on him confronting him with his inaction re trikafta and the cf population in Canada, he would react and he would take action. Problem is, who do we contact in the US and how do we motivate them to send a letter to the Prime Minister, calling him out for the unnessary cf deaths occuring during his watch?
Emails for Trudeau: [email protected] [email protected]
email for Federal Minister of Health: [email protected]
Any thoughts?
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canadian-cf-dad
MemberJune 8, 2021 at 4:09 pm in reply to: Trikafta – Expect more benefit than just to mucous and sweat, lungs and gut.Opps.. forum would not accept the facts in Canada. Perhaps you could email me and i could share some information with you? [email protected]
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canadian-cf-dad
MemberJune 8, 2021 at 11:42 am in reply to: Trikafta – Expect more benefit than just to mucous and sweat, lungs and gut.Trikafta still not approved for use in Canada. Can you believe it?
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canadian-cf-dad
MemberApril 29, 2021 at 1:14 pm in reply to: Drug provision and Trikafta in different countriesThank you for sharing your story and the challenges to get treatment in Russia. You certainly have my sympathy. Sadly Canada is likely not your answer as we are in the same position. Our government effectively witholds treatment for our 6000 cf afflicted children and young adults. Canada delays drug approval for years and years and hides behind Canada’s layers deep, snail paced, drug approval bureaucracy. Canada is currently the only G7 country in the world which has not approved Trikafta. Sorry on behalf of Canada. Wishing you well.