Learning to Embrace My Poor Unfortunate Holes
“Everybody’s gross.” It’s a motto that I live by, as well as the opening number of my original musical comedy about a girl with cystic fibrosis, “Fall Risk.” Cystic fibrosis (CF) patients…
Lung, Scrappy, and Hungry — Nicole Kohr
Nicole graduated summa cum laude from Kean University’s School of Communication, Media and Journalism; she became certified in the theory and practice of child life the same year. Nicole is a satirical writer in the cystic fibrosis community. Diagnosed with CF at age 5, Nicole spent most of her life hiding her disease. When she got a double-lung transplant in June 2019, she embarked on a journey of transparency, and now hopes her column, “Lung, Scrappy, and Hungry,” will inspire others to be transparent.
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‘One Last Time’: Saying farewell to my column
“One Last Time” from the musical “Hamilton” is sung by the actor who portrays George Washington and sets Washington’s farewell address to music. It’s the perfect song for this breaking news: This…
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Welcome to ‘Lung, Scrappy, and Hungry,’ a Column About My CF Journey
Note: This column was updated Aug. 2, 2022, to reflect the column’s new name, “Lung, Scrappy, and Hungry.” I was busy in June 2019. I had been evaluated for a double-lung transplant earlier…
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