Lung Transplant Is Not the Boogeyman I Imagined
There are two great fears in a person’s young life: “The Talk” and the Boogeyman. The Transplant Talk is an intertwining of the two for many with cystic fibrosis. My dad was…
Victorious — Brad Dell
Brad Dell is Deaf and was diagnosed with cystic fibrosis at 2 months old in 1993. He received a double-lung transplant from UC San Francisco in January 2017, then cochlear implants nine months later. He lives in Hawaii, where he was raised. Usually he’s traveling the world, chugging coffee, or devouring books. He also pastors Restoration Community Church and serves as the director of community content at Bionews, this site’s publisher.
Featured Post
From kicker to hand-holder: Being brave despite cystic fibrosis
As a child I was a kicker, the type no nurse wants to be near when wielding needles and throat swabs. Eventually I’d relax my shrieking when Mom or Dad held my hand and…
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Strong in the Broken Places: My CF Scars
I was repulsed by my body. My arms were scarred and barren of muscle, thin as twigs. They hung from a bumpy, pale torso — bumpy from the ribs that protruded,…
Healthier Ways to Help Gain Weight
Gaining weight can be just as difficult as maintaining lung function for many with cystic fibrosis. Most have heard people without CF joke that they wish they had our problem with…
A Celebration of the CF Community
I’ve seen videos of people with cystic fibrosis, messaged other patients on the internet, and knew some as a child. But since the early years I barely have any memory of,…
I’m an X-Man, But Don’t Call Me a Hero
I crawled into my closet and pulled out a dusty, battered Ultimate X-Men: Vol. 1. Sunray slivers peeked through the slightly-ajar door, lighting sections of the comic book as I read…
Things I Wish I’d Done to Improve My CF Treatment
Twenty-four years of living with cystic fibrosis allows for a plethora of learning lessons — mostly through mistakes I’ve made. There are many things I wish I had done differently regarding…
Perspective Sits in Places: Overcoming My Trauma
Many label their lives with cystic fibrosis a “battle.” I prefer “war.”* There’s the daily grind: The clinic visits are strategic meetings. The treatments are patrols. The two-week antibiotic courses are skirmishes.
In Appreciation of Siblings
In ancient home videos of the Dell family, there’s shot after shot of my sister Shelby clinging to me tightly while I cringe. That was a good illustration of…
7 Tips for Managing Your Pain
I’d been anticipating my bilateral cochlear implant surgery for more than a year. I knew it required some drilling into my skull, cuts behind the ear,…
Practical Tips for Improving Treatment Compliance and Efficiency
Only 61.8 percent of cystic fibrosis patients comply with their daily respiratory medication and 41.2 percent comply with physiotherapy plans, according to a 2008 study. I’ve observed that most patients…
The 6 Doctors You’ll Meet in Your Cystic Fibrosis Journey
You’ll meet legions of doctors throughout your life with cystic fibrosis. You’ll encounter doctors you adore and who will save your life countless times. And you’ll encounter some who make life a…
A Letter to CF Parents
Dear parent, I know you’re afraid. My parents were afraid, too. My mom left a college biology class crying; the lesson on genetics included the life expectancy of a child with cystic fibrosis. There’s…
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