31 Days of CF: Micah’s Story

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31 Days of CF: For the month of May, CF News Today will be inviting those in the community to share their experiences and stories with particular topics and themes. To start off May Awarness, we’re happy to have @rekabhacim share What CF Means to Him: ⁣ Hello! My name is Micah, I am 30, and I have CF. For day one of 31 days of CF I am writing about what CF is to me. When I was fresh out of high school and living on my own CF was a Chance For living the way I ultimately wanted to. To feel, say, and act any way that I wanted to regardless of anyone else. It was freedom because I had an excuse to be as reckless as I wanted as long as it made me happy. So I went out all the time, stayed out late, drank too much, and let’s face it was looking for trouble. I spent my childhood and teenage years adhering to all of the rules of this disease and I wanted to break free. This is what CF was to me.⁣ ⁣ Fast forward, I hit a wall, I was getting tired of this “freedom” and it wasn’t doing anything for my health. I decided I wanted to live and live deeply. CF became this motivation to become stronger (mentally and physically). I fell in love, got married, and started working at a school filled with children whom I love. I found that instead of CF being this dark ominous cloud constantly looming over me it was actually this chance to paint something beautiful. CF has made me strong, caring, loving, and humble. It has allowed me to be a bright spot in the lives of others focusing on them more than myself. One thing I practiced while in the hospital was asking every staff member who entered my room how their day was going. It costed me nothing to ask and it greatly elevated my spirit and mindset to put myself aside and genuinely care and listen. I wanted to make their job of caring for me as pleasant as I could. So CF, to me, is a Chance For finding beauty and meaningfulness in the midst of suffering. ⁣ ⁣ What is CF your Chance For?⁣

A post shared by CFNewsToday (@cfnewstoday) on May 1, 2019 at 8:28am PDT

Author Details

Luisa Palazola

Luisa Palazola is a 25-year-old with CF living in Memphis, Tennessee. She injects her perspective as a Hispanic woman and her love for life and stories in all her interactions. In her downtime, she’s learning Portuguese and is an avid coffee lover.

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2 comments

Tami Dixon says:

May 20, 2019 at 12:34 pm

I have Cystic Fibrosis and Alpha One Antitrypsin Deficiency MZ

Jpaul says:

June 13, 2019 at 9:35 am

Way to go Micah, you’re doing a great job. Don’t focus on the disease or yourself, uncover that which is beyond, great approach! Doing this myself for 55 years now and cf never bothered me.

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