Air of Life — Ed Jordan

I lost my daughter, Jasmine, to cystic fibrosis (CF) at age 27, but we battled and lived with this rare genetic disease since before she turned 2 years old. In 1998, when Jasmine was 6, our mornings always started early. The kitchen was never quiet for long — it…

Cystic fibrosis (CF) doesn’t take breaks, but my late daughter, Jasmine, would have none of that. Even as a child, she was a pro at fighting this rare, genetic illness. Children are so much more resilient than we realize. Her joy in life taught me not to focus only…

I suspect that many people think living with a chronic illness means that all of your days are filled with drama, such as emergencies, hospitalizations, and constant danger. But that wasn’t how it was for me and my late daughter, Jasmine, who had cystic fibrosis (CF) and passed away…

People always say kids are resilient. I used to nod politely, not really knowing what they meant. But then I had Jasmine, my daughter with cystic fibrosis, and life rewrote the definition right in front of me. At 4, she already knew her routines better than most adults.

After my late daughter, Jasmine, was diagnosed with cystic fibrosis (CF) at the age of 2, the days started to run together while we figured out a shaky rhythm. I learned the quirks of a nebulizer’s hum, the best tricks for coaxing Jasmine to take her pills — mixing crushed…

Sitting in that brightly lit hospital room, I was a bundle of nerves, anxiously waiting to hear what the doctor had to say about my young daughter, Jasmine. You know that feeling: The heart races, and a heavy pit churns in your stomach. When the doctor knocked on the door,…