Mornings with my daughter, Jasmine, who passed away at 27 due to cystic fibrosis, always began quietly. She would wake up before me, her hair still wild from moving around in her sleep. I would find her sitting on the edge of her bed, feet dangling, already thinking about…
Air of Life — Ed Jordan
Ed Jordan was a caregiver to his daughter Jasmine who was diagnosed with cystic fibrosis in 1994 and died in 2019. Ed and Jasmine enjoyed horror movies, video games, and midnight snacks. Ed served 12 years in the U.S. Army, and this experience instilled him with a commitment to running a tight ship, which helped with managing Jasmine’s medications, insurance, and doctors. Ed finds immense joy in the great outdoors, where he embraces the beauty of nature as a welcome escape.
Once upon a time, in a small town where laughter mingled with the scent of blooming flowers, I became a parent. My daughter, Jasmine, was born on a sun-drenched day in August, a tiny bundle with curious eyes and a spirit that sparkled like the stars. Little did we know…
I lost my daughter, Jasmine, to cystic fibrosis (CF) at age 27, but we battled and lived with this rare genetic disease since before she turned 2 years old. In 1998, when Jasmine was 6, our mornings always started early. The kitchen was never quiet for long — it…
Cystic fibrosis (CF) doesn’t take breaks, but my late daughter, Jasmine, would have none of that. Even as a child, she was a pro at fighting this rare, genetic illness. Children are so much more resilient than we realize. Her joy in life taught me not to focus only…
I suspect that many people think living with a chronic illness means that all of your days are filled with drama, such as emergencies, hospitalizations, and constant danger. But that wasn’t how it was for me and my late daughter, Jasmine, who had cystic fibrosis (CF) and passed away…
People always say kids are resilient. I used to nod politely, not really knowing what they meant. But then I had Jasmine, my daughter with cystic fibrosis, and life rewrote the definition right in front of me. At 4, she already knew her routines better than most adults.
After my late daughter, Jasmine, was diagnosed with cystic fibrosis (CF) at the age of 2, the days started to run together while we figured out a shaky rhythm. I learned the quirks of a nebulizer’s hum, the best tricks for coaxing Jasmine to take her pills — mixing crushed…
Sitting in that brightly lit hospital room, I was a bundle of nerves, anxiously waiting to hear what the doctor had to say about my young daughter, Jasmine. You know that feeling: The heart races, and a heavy pit churns in your stomach. When the doctor knocked on the door,…
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