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Early this year, Lauren Rowe shared her personal story of one of the many downsides of dealing with an invisible illness. The story became an internet phenomenon with many people sharing the post wanting to raise more awareness to these hidden conditions that are not easy to deal with. Lauren…

Between all the complications and difficulties that having CF entails, it is always possible to find amazing stories like the one about the cystic fibrosis (CF) patient who traveled the country despite his condition. In this Cystic Fibrosis Foundation video, watch Ginny Drapeau, BSN, RN, CCRP, research coordinator at the Central…

Peter and Mary Frey are a young couple just like any other and starting a family together. However, there is one thing that makes their family different from the average American household. Mary suffers from cystic fibrosis (CF). Read more about their amazing story here.  In this The Frey Life video, watch…

What is CFTR? Cystic fibrosis transmembrane conductance regulator (CFTR) is a gene that regulates the production of a protein which works as a channel for the membrane of cells in the body that create mucus, saliva, sweat, tears or digestive enzymes. This conductor leads particles, that are negatively charged and…

In this Beau Rich video, recap the amazing journey that this cystic fibrosis (CF) patient took back in 2014 when traveling all over America and maintaining his CF care with new mobile medical devices. One of those devices, as we can see in the video,…

A new social media campaign was launched in Ireland to advocate for the approval of Orkambi for cystic fibrosis (CF) patients in the country. The drug combines the compounds ivacaftor and lumacaftor. Orkambi, which is a novel therapeutic approach designed to treat the root cause of cystic fibrosis instead of just the severity of symptoms, was approved…

Cystic fibrosis (CF) is one of the most common lung diseases in children and is a life-threatening disorder that causes, among other things, lung infections and breathing difficulties. Breathing is the most important thing your body does. Without breathing, you simply cannot live. It’s something you do without even thinking about —…

Do you remember the #Strawfie Challenge? Do you feel like people around you don’t understand what you go thorough as a cystic fibrosis (CF) patient? In this Breathe With Me Strawfie Challenge video, the creators of the #Strawfie Challenge will help you spread the…

Charles Michael Duke is a 21-year-old singer and actor from Bournemouth, England, who was diagnosed with cystic fibrosis (CF) at birth. In this interview, Charles Michael Duke speaks about his struggle with the genetic and chronic disease as well as the difficulties of waiting for a potentially life-saving double lung…

https://www.youtube.com/watch?v=Eqa-_tHf8LQ Patients diagnosed with cystic fibrosis (CF) may need to spend quite a bit of time in hospital for examinations or treatments, which is why it’s important for patients to realize what they may need and pack ahead. In this video, a 16-year-old cystic fibrosis sufferer and vlogger shares her own…