Bionews Staff,  writers and editors—

Photo courtesy of Keena Bauer Day 2 of 31 This is Keena Bauer’s story: My name is Keena Bauer. I am 44 and live in Nebraska. I was diagnosed with cystic fibrosis (CF) at 6 months old, so exercise and the importance of it have…

Photo courtesy of Beth Vanstone Day 1 of 31 This is Beth Vanstone’s story: Our story starts with my daughter Madi being diagnosed with cystic fibrosis (CF) at 8 months old. Finding a diagnosis was tough, but not nearly as difficult as learning and understanding…

FFF Enterprises and Bionews Services, publisher of this website, announced today that both rare and orphan disease advocates are joining forces to provide patients with resources to help them connect as a community and continue to manage their health during this time when many are finding themselves alone.

Dating can feel like a wasteland of hookups, insincerity, miscommunication, and ghosting. It’s sometimes this vicious, disingenuous place where something as delicate and personal as cystic fibrosis doesn’t quite fit in. After a slew of terrible dating experiences and an awful boyfriend, I had a moment where I decided that I wasn’t…

For many of us, being a part of the cystic fibrosis community is obligatory. No matter our degree of engagement, we have CF and therefore are part of a community larger than we are. Choosing to play a part in the community can be one of the most…

A 39 year-old man with Cystic Fibrosis who was planning to scale Mount Everest in an effort to raise money and awareness for the disease is reportedly safe and making his way back from Everest’s base camp after a massive earthquake over the weekend ravaged the region leaving…

A 39 year-old man with Cystic Fibrosis is attempting to become the first person with the disease to climb Mount Everest. Nick Talbot hopes that his perilous attempt to scale the highest and most famous mountain in the world will help to raise awareness and funds for CF while encouraging those…

Cystic Fibrosis News Today is pleased to announce that Stephen Shannon, a student researcher currently earning his Ph.D. and a person with Cystic Fibrosis, will join the website’s editorial staff and publish a weekly column on his personal journey in living with the disease, as well as fresh insights…

2014 has been a year highlighted by a steady stream of compelling stories about young people with cystic fibrosis (CF) bearing witness to how a desire to live life to the fullest and lead an active, healthy lifestyle can overcome the daunting challenges and ominous realities of the disease. Joining…

While some prevalent diseases, such as cancer and heart disease, appear to be equally distributed throughout the world, other diseases tend to be more regional, based on both genetic predispositions and environment. In the case of diseases spurred on by environmental factors, such as Neglected Tropical Diseases, which…