Brad Dell,  —

Adventuring with cystic fibrosis can be a headache when dealing with typical travel planning on top of your health considerations: packing all meds and supplies, having a crisis plan, knowing airport security rules, and avoiding bacteria and viruses during the travel. Here are some tips to help ease the traveling…

Jan. 14, 2017 was the worst day of anxiety I’d had in the five months of waiting for my lung transplant. A frantic, nearly palpable tension was in the air. After five confident months believing the “light at the end of the tunnel” was rebirth, rather than…

“I can give something to relax you,” the doctor says. I stiffly nod, neck taut and arm outstretched for an arterial blood gas test. The doctor holds up a syringe — a drop of shiny liquid is squished between needle and plunger. It’s the purest looking substance…

We asked patients with cystic fibrosis and their families if they had any “life hacks” to share with the community that have made their lives easier. Below are some of our favorite responses (names removed for privacy): Hygiene and sanitation “When I take a shower, I never tilt…

The world isn’t fair. Anyone born with a genetic disease like cystic fibrosis before they’ve even had a chance to earn bad karma knows that. But that doesn’t mean we need to stand aside and “take it” when other people are unfair to us…

Dr. Gwen A. Huitt, an infectious disease doctor with a special interest in mycobacteria and cystic fibrosis, spoke in our last article about what aspiration is and how it’s dangerous to CF patients. “Aspiration is defined as any liquid, substance, or foreign body that gains access (below the vocal cords)…

It’s interesting to see characters with cystic fibrosis in popular media — even if the disease isn’t always portrayed realistically. Check out these films, shows, and books where cystic fibrosis appears, and how the disease is depicted in each one: Foreverland | Film | 2011 In…

A couple weeks ago, I wrote about misunderstandings within the CF community. But what about misunderstandings projected into the community from the outside? If you’re a non-CFer, keep these things in mind when interacting with someone who has the disease. You might not feel sick, but that…

Dr. Gwen A. Huitt is an infectious disease doctor at National Jewish Health with a special interest in mycobacteria, bronchiectasis, and cystic fibrosis. Here, she talks to us about the hidden dangers of a major medical issue she feels doesn’t receive the attention it needs in the CF community…

“You’re so lucky.” I’ve heard and read that all too often over the past year. I’m lucky I lived to my 20s with cystic fibrosis, I’m lucky I had a lung transplant, I’m lucky my recovery was relatively smooth. The phrase is…