Becoming Visible — Elizabeth Rogers
Finding My Zen in Animal Crossing
As you may have noticed, the world is having a bit of a moment right now. I started self-isolating as soon as the first case of the new coronavirus appeared in my…
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Elizabeth Rogers -- Becoming Visible
I’m Worried About Coughing in Public
Lately, I’ve had a lot of fears. Like others in the global cystic fibrosis community, I’m self-isolating. I follow the CF Foundation’s COVID-19 plans religiously, and much of my county is…
My Pets Help Me Deal with Cystic Fibrosis
A few months ago, I was chatting online with the parents of an infant who was newly diagnosed with cystic fibrosis (CF). They discussed how their lives would change and the precautions…
My Experience with Trikafta Has Been More Difficult Than Expected
I’ve been fortunate to start taking Trikafta, a next-generation, triple-combination treatment for cystic fibrosis. My journey began in December, but it hasn’t been the easiest path to walk along, as…
I Struggle with Feeling Like an Outsider in the CF Community
A cliché exists in the world of reality TV: the contestant who says they’re not there to make friends. I never meant to be that person, but I’m afraid that’s whom…
I Let CF Win When I Gave Up My Veterinarian Dream
It’s hard not to dwell on all of the future plans I might have had if cystic fibrosis (CF) hadn’t entered my life. Things seemed limitless as a…
Addressing the Issues that Trikafta Benefits Will Bring
It’s time to move forward. The recent approval by the U.S. Food and Drug Administration of the triple-combination treatment Trikafta (elexacaftor, tezacaftor, and ivacaftor) has sparked hope in the cystic fibrosis…
Can We Talk About CF Pain?
We need to talk about pain. Growing up, there was a clear delineation in my mind: Cystic fibrosis (CF) could be painful sometimes, but it wasn’t a disease that caused constant pain.
I Can’t Visualize My Video Game Characters Without Cystic Fibrosis
I have what some might call a bad habit. I can easily spend hours a day playing video games. My favorites are role-playing games that allow me to create…
Accepting the Bumps in the Road
Life with cystic fibrosis (CF) has made me all too aware of the ticking clock. Having a natural tendency to be impatient, I’m a person who wants things done and over…
My Temporary Foray into the Visible Realm of an Invisible Illness
Cystic fibrosis is, for the most part, considered an invisible illness. Shortness of breath isn’t visible. Pain in our joints and the discomfort of digestive issues may show on our faces,…
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