Becoming Visible — Elizabeth Rogers

Lately, I’ve had a lot of fears. Like others in the global cystic fibrosis community, I’m self-isolating. I follow the CF Foundation’s COVID-19 plans religiously, and much of my county is sheltering in place, with most…

A few months ago, I was chatting online with the parents of an infant who was newly diagnosed with cystic fibrosis (CF). They discussed how their lives would change and the precautions they’d have to take with…

I’ve been fortunate to start taking Trikafta, a next-generation, triple-combination treatment for cystic fibrosis. My journey began in December, but it hasn’t been the easiest path to walk along, as I’ve encountered unexpected twists and…

A cliché exists in the world of reality TV: the contestant who says they’re not there to make friends. I never meant to be that person, but I’m afraid that’s whom I’ve become.  When…

It’s hard not to dwell on all of the future plans I might have had if cystic fibrosis (CF) hadn’t entered my life. Things seemed limitless as a child. If you had asked…

It’s time to move forward. The recent approval by the U.S. Food and Drug Administration of the triple-combination treatment Trikafta (elexacaftor, tezacaftor, and ivacaftor) has sparked hope in the cystic fibrosis community. While…

We need to talk about pain. Growing up, there was a clear delineation in my mind: Cystic fibrosis (CF) could be painful sometimes, but it wasn’t a disease that caused constant pain. It was…

I have what some might call a bad habit. I can easily spend hours a day playing video games. My favorites are role-playing games that allow me to create my own character, down to…

Life with cystic fibrosis (CF) has made me all too aware of the ticking clock. Having a natural tendency to be impatient, I’m a person who wants things done and over with now. Results have to…

Cystic fibrosis is, for the most part, considered an invisible illness. Shortness of breath isn’t visible. Pain in our joints and the discomfort of digestive issues may show on our faces, but those symptoms aren’t represented…

Everyone with cystic fibrosis knows that feeling. Sometimes, it creeps up on you slowly. Other times, it hits right away, like a truck speeding down the wrong side of the highway. That feeling is, of course, caused…