Janet Stewart, MSc,  —

The public is invited to vote and help determine this year’s AbbVie Thriving Undergraduate and Thriving Graduate Scholarships among eligible students with cystic fibrosis (CF). The criteria for selecting the winners are academic excellence, creativity, and community involvement/extracurricular activities. Each scholarship totals $25,000 and will be awarded to two deserving students.

Attain Health will partner with DarioHealth, a digital health and big data solutions company, to test its Dario Engage platform to monitor blood sugar levels in cystic fibrosis (CF) patients with CF-related diabetes (CFRD). Attain Health provides integrative health coaching for CF patients. CFRD is an unusual form…

Vertex Pharmaceuticals announced the opening of a  170,000-square-foot research facility in San Diego, representing a significant expansion of its research presence in the area. The San Diego site is one of Vertex’s three research hubs where the company’s approved, three disease-modifying cystic fibrosis (CF) medicines were discovered. More than 70…

The new Cystic Fibrosis Innovation Hub at the University of Cambridge in the U.K. will encompass exciting new research about treatments and approaches for battling the disease, and take a “moon shot” at finding a cure. The hub is located at the University of Cambridge in the U.K. The Cystic Fibrosis…

The Therapeutics Development Network (TDN) of the Cystic Fibrosis Foundation has endorsed Proteostasis Therapeutics‘ trial assessing PTI-428 in combination with Symdeko (tezacaftor/ivacaftor) as a treatment for cystic fibrosis (CF). The Phase 2 trial will assess the safety, tolerability and pharmacokinetics of multiple doses of PTI-428 over a 28-day…

The U.S. Food and Drug Administration has given the go-ahead for MRT5005, Translate Bio’s lead candidate to treat the underlying cause of cystic fibrosis (CF), to be tested in a Phase 1/2 clinical trial. The company expects to begin dosing enrolled patients by mid-year. MRT5005 is designed to address…

Facemasks are just as good as mouthpieces and noseclips for breathing test measurements in preschool-age children, a study found. Multiple breath washout (MBW), a test that uses this equipment, measures lung function, making it possible to detect early lung disease. The study, “Comparison of facemask and mouthpiece…

Caregivers of people with rare diseases face emotional, financial, physical, and social strain and receive little outside support, a U.S. study found. The findings will be presented to Congress this spring along with policy recommendations to help support those caring for people with rare diseases. The report is titled “…

It takes only slightly longer to deliver an inhaled therapy in cystic fibrosis (CF) patients sitting upright than when lying alternately on either side, according to an Australian study. Usually, doctors have patients sit upright when inhaling nebulized medications in order to maximize the lung’s volume. However, experts say distribution patterns…

A recent study found improvements in lung function and body mass index (BMI) among children and young adults with cystic fibrosis (CF) both in the United States and Canada from 1990 to 2013, though the American patients improved faster than those in Canada. The study, “Comparison of Nutrition and…