As President Trump signed the recently passed Right to Try legislation into law in a White House ceremony, Jordan McLinn…
Articles by Larry Luxner
Should scientists have the right to edit the genes of future generations to eliminate hundreds, if not thousands, of potential…
Finding treatments and potential cures for rare diseases is crucial, but so is the quality of patients’ lives — a…
Two years after approving it, the 28-member European Union will begin enforcing its General Data Protection Regulation (GDPR) — a…
A baby born with cystic fibrosis (CF) in Germany today is likely to live to be 40 or 50, while…
The European Union isn’t doing enough to protect the 30 million or so people with rare diseases who live in…
The National Organization for Rare Disorders (NORD) will celebrate the 35th anniversary of both the 1983 Orphan Drug Act and…
When the Cystic Fibrosis Foundation (CFF) was established in 1955, most people with cystic fibrosis (CF) didn’t make it to…
At least 800 people representing some 45 countries are soon expected to gather in Austria’s capital city, Vienna, for…
A little-known government entity within the National Institutes of Health (NIH) is helping to lead U.S. efforts to speed…