Mary Chapman, features writer —

Employees at the Development Bank of Wales, in the U.K., have raised £30,400 (around $37,000) to support the Cystic Fibrosis Trust. Every year, bank employees are asked to nominate a charitable organization to support, with which they have a personal connection. This year, the Cystic Fibrosis Trust was…

Children often mistakenly pronounce cystic fibrosis (CF) as “65 roses.” Eilís Moroney and Ruth Cahill, both parents of children with this progressive lung disease, have turned that endearing practice into a book aimed at explaining CF to youngsters in an age-appropriate way. Titled “Our Baby has Sixty-Five Roses,”…

If the Cystic Fibrosis Trust (CFT) has its way, the United Kingdom will be awash in yellow on June 21. On that day, the nonprofit organization is asking patients and supporters to don yellow — hopefully while fundraising — to symbolize a brighter future for those with the progressive inherited…

Former National Football League quarterback Boomer Esiason, whose son has cystic fibrosis (CF), will be a keynote speaker at the National Association of Specialty Pharmacy’s (NASP) Annual Meeting & Expo. One of the most high-profile figures in the fight against CF, Esiason will speak on the opening…

The non-profit organization Emily’s Entourage is teaming up with event coordinator Eesho for its 4th Annual Emily’s Entourage New York, a fundraiser for new treatments and a cure for cystic fibrosis (CF). Known as “EENY: Ultra Violet,” the talent-laden event will begin at 7 p.m.  Saturday, May 4,…

Like scores of runners everywhere, when Joshua Skampo gets home from work, he pulls on his running shoes and heads out into the dusk. But unlike most runners, Joshua runs for his life. He has cystic fibrosis (CF), a strength-sapping disease that makes it hard to breathe. Thick mucus…

“Five Feet Apart,” an upcoming romantic movie about two teens with cystic fibrosis (CF) who fall in love while undergoing treatment, now has a marketing partner — rue21. The film is set to open at theaters around the U.S. on March 15, a press release states. An apparel and…

Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run as high as 350 million — they are thought to impact. Across countries, patients, caregivers and advocates will paint faces, wear…

Cystic Fibrosis Canada — Calgary and Southern Alberta Chapter will hold the 30th Annual 65 Roses Ladies Golf Classic event on June 17 to raise funds and awareness for cystic fibrosis (CF). The automotive dealership Lexus of Calgary will present the event, to be held at the Earl Grey…

After eight years of easing the financial burden of protracted hospital stays, Claire’s Place Foundation has reached the $1 million mark in assistance to families living with cystic fibrosis (CF). The foundation, launched in 2011, provides emotional and financial support to those touched by the disease. To date, its ongoing…