Cystic Fibrosis Canada Holding 30th Annual Golf Fundraiser Event June 17 in Calgary
Cystic Fibrosis Canada — Calgary and Southern Alberta Chapter will hold the 30th Annual 65 Roses Ladies Golf Classic event on June 17 to raise funds and awareness for cystic fibrosis (CF).
The automotive dealership Lexus of Calgary will present the event, to be held at the Earl Grey Golf Club in Calgary, Alberta, according to a press release. For nearly a century, Earl Grey has been one of the area’s premier private clubs.
The event is the longest-running women-only golf tournament in Calgary. As of last year, the effort has raised more than $1.1 million for CF research and patient care.
Estimates indicate there are about 360 children and young adults with CF in Calgary and southern Alberta.
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Ticket prices have not yet been announced. (At last year’s event they were $275 per person; $225 during early registration.) For more information or to donate, contact the Cystic Fibrosis Canada — Calgary and Southern Alberta Chapter at (403) 266-5295, or email [email protected]
Cystic Fibrosis Canada’s mission is to find a cure for CF. Since its establishment in 1960, the internationally recognized non-profit organization, with 50 volunteer chapters across the country, has invested more than $235 million in leading research, innovation and care.
Canada has one of the world’s highest survival rates for CF, with patients living to a median age of 51 years, which is more than about 10 years longer than those in the United States. Researchers believe that this difference between the two countries is due to nutritional support programs, lung transplants, and health insurance status.
Still, about one year ago, on Rare Disease Day (Feb. 28), Cystic Fibrosis Canada called attention to uneven access to CF and other rare-disease medications in Canada, where each province makes decisions regarding treatment coverage. The organization is working to develop relationships with provincial and federal government officials to push for changes in drug coverage management, so that every Canadian CF patient has access to the same medical services and medications across the country.
Cystic Fibrosis Canada also is advocating for the coverage of newer and relatively pricey treatments for the disease.