Patrícia Silva, PhD,  director of science content—

14 year-old Chilean teenager Valentina Maureira became internationally known when she posted a video on YouTube asking the government’s permission to end her life. Valentina suffered from cystic fibrosis, and a month after her plea to the Chilean President Michelle Bachelet was refused, she died from complications associated…

The cystic fibrosis (CF) community will get a firsthand look at the anticipated findings of the Wave 1 multi-dose trial conducted by the Gene Therapy Consortium (GTC), which includes the University of Oxford’s Gene Medicine Group, the University of Edinburgh’s Centre for Molecular Medicine and Roslin Institute, and Imperial College…

An international research team led by researchers at the Sapienza University of Rome in Italy reported that the assessment of daily physical activity in adult patients with cystic fibrosis (CF) could be used as a valuable tool to determine their aerobic fitness and exercise performance. The study was published in…

Spyryx Biosciences, Inc. has successfully raised $18 million in Series A venture capital financing, which will be used to develop novel therapies to treat respiratory conditions such as cystic fibrosis (CF) and chronic obstructive pulmonary disease (COPD). The funding was secured through deals with Canaan Partners, Hatteras Venture Partners and…

Molecular genetics information company, Good Start Genetics, Inc. has presented data from research being conducted to improve detection of inherited diseases, including cystic fibrosis (CF). The results of two studies that examined detection rates in patients undergoing in vitro fertilization (IVF) were presented  at the 2015 Annual Clinical and Scientific Meeting…

Researchers at the University of Calgary in Canada have recently published in the journal BMC Pulmonary Medicine findings indicating that lung colonization by the bacteria Streptococcus pneumonia is relatively rare in patients with cystic fibrosis (CF) and when present, it apparently does not have an adverse impact…

Last Friday marked the start of national Cystic Fibrosis Awareness Month, when thousands of volunteers across the country will fundraise and advocate for more research to fight the disease. The month-long initiative will be spearheaded by the Cystic Fibrosis Foundation (CFF), which will organize a series of events nationwide. The…

Cystic Fibrosis Foundation Therapeutics, Inc. (CFFT) has granted a $5 million development award to clinical stage drug developer Corbus Pharmaceuticals Holdings to support the development process of its investigational drug Resunab to treat cystic fibrosis (CF). The funding from the CFFT, which is the non-profit drug discovery and development affiliate of…

Researchers at Yale University and Yale School of Medicine in Connecticut recently published in the journal Nature Communications that they were able to successfully correct the most common mutation in the gene responsible for cystic fibrosis (CF). The study is entitled “Nanoparticles that…

The Medicines Company recently announced in a news release that the U.S. Food and Drug Administration (FDA) has approved the company’s supplemental new drug application (sNDA) for a new injectable formulation of the antibiotic MINOCIN® (minocycline). The news is significant for the cystic fibrosis community, as MINOCIN is…