Patrícia Silva, PhD, director of science content —

“I’m fear-driven. I want to do everything I can for my granddaughter to extend her life, and the lives of those who are struck with this disease.” – David Kuhn The medical community now has a more positive outlook towards cystic fibrosis (CF) management compared to how…

Biopharmaceutical company AbbVie has begun the voting process for the award of 40 scholarships to outstanding students with cystic fibrosis (CF). The award will grant each winner $2,500 to be invested in their undergraduate or graduate school education during the next school…

European Cystic Fibrosis Society (ECFS) president and Cystic Fibrosis Trust professor Stuart Elborn was one of the contributors of the latest breakthrough in cystic fibrosis (CF) research, and he believes that the positive results of two phase 3 studies of the drugs ivacaftor (Kalydeco) and lumacaftor may…

A fundraising event at the Hyatt Regency Huntington Beach on Saturday, July 19th attracted more than 800 people and became a record-setting fundraising event for the Cystic Fibrosis (CF) Foundation, collecting $1.2 million in donations to help find a cure for the chronic disease. The seventh annual “Pipeline to…

According to a recent study conducted by a medical student from Manchester University in the United Kingdom, approximately 50 percent of cystic fibrosis patients are also infected by the Aspergillus fungus, which is caused by an exposure to mold. The research highlights the dangers of mold, and it may help doctors improve diagnosis…

Researching and developing therapies to help patients survive cystic fibrosis (CF) remains one of the main goals of a number of CF research centers and biotech organizations worldwide. However, for the Cystic Fibrosis Lifestyle Foundation, an organization founded in 2003, their goal is to address the…

Xander Bailey is a 18-year-old cystic fibrosis patient who accomplished his dream last weekend thanks to the Make-A-Wish Foundation. The teen was added to the Seattle Sounders soccer team’s lineup and even started a friendly match against Tottenham Hotspur. The Make-A-Wish recipient from Greater Pennsylvania and West Virginia was given…

23 year-old Beau Rich is not the first person to plan an inspired cross-country trek across the United States, visiting some of the most picturesque nature spots along the way. He’s also not the first person to plan on filming his travels and putting together a movie about his…

Robert J. Beall, President and CEO of the Cystic Fibrosis Foundation, was invited to a hearing on the theme “21st Century Cures: Incorporating the Patient Perspective,” at the House of Representatives’ Energy and Commerce Committee. The CF Foundation was one of the four patient advocacy institutions selected to testify.

The nonprofit organization Claire’s Place Foundation, founded by a 17-year-old cystic fibrosis patient (CF), was recently awarded “Small Nonprofit Organization of the Year” by the Los Angeles Business Journal. The recognition was attributed to the positive the impact that the organization named after Claire Wineland has had on children and…