Patrícia Silva, PhD, director of science content —

The nonprofit organization Claire’s Place Foundation, founded by a 17-year-old cystic fibrosis patient (CF), was recently awarded “Small Nonprofit Organization of the Year” by the Los Angeles Business Journal. The recognition was attributed to the positive the impact that the organization named after Claire Wineland has had on children and…

The first Princeton, IL cystic fibrosis (CF) walk raised over $13,000 recently, $3,000 more than expected. The Great Strides Cystic Fibrosis Walk, held on June 28th, was organized by 28-year-old student Cheriz Kunkel, who was diagnosed with CF when she was a baby. Kunkel announced that the walk was a major…

Baby Bridget, born on June 27th, became the first baby conceived in Ireland using pre-implantation genetic diagnosis (PGD), a technique used to screen embryos for genetic mutations such as cystic fibrosis (CF). Despite the fact that both parents have genetics that, when combined, can lead to CF in their children, baby…

In the wake of recent promising clinical results, Vertex Therapeutics announced the submission of a supplemental New Drug Application to the U.S. Food and Drug Administration for the approval of the drug Kalydeco (ivacaftor) for patients with cystic fibrosis who are more than 18  years old and…

Hemolung Respiratory Assist System (RAS) is an innovative Pittsburgh-made, dialysis-like alternative or supplement to mechanical ventilation that is not approved by the U.S. Food and Drug Administration (FDA), but is gaining several positive opinions in the United States, following the promising results when used on an American terminal patient suffering from…

Drug developer Pharmaxis has announced that the company’s medication for cystic fibrosis, Bronchitol, was included in the shortlist for the UK Prix Galien Orphan Drug Award, an internationally-recognized prize that distinguishes technical, scientific, and clinical research skills necessary to develop innovative medicines. The therapies in the competition will be analyzed…

In the wake of positive news about new combination therapies involving the Vertex drug Kalydeco (ivacaftor) for people with cystic fibrosis (CF), the drug recently received a positive recommendation for approval by the European Committee for Medicinal Products for Human Use (CHMP) for patients aged…

Half of the adults who suffer from cystic fibrosis (CF) are infected with the aspergillus fungus, according to medical data from CF patients in 30 different countries. Not only is the discovery a surprise, as the findings may be relevant for the diagnosis and treatment of the rare genetic…

lev radin / Shutterstock.com An initiative organized last Saturday to support the Cincinnati Children’s Hospital Medical Center in Ohio raised $2 million for its cystic fibrosis and pulmonary programs, a historic amount for the event. The 10th annual Celestial Ball at the Duke Energy Convention Center brought…

A drug derived from Norwegian seaweed may help increase the life expectancy of people with cystic fibrosis, which currently averages about 40 years. The Norwegian company AlgiPharma presented OligoG at the 37th European Cystic Fibrosis Conference in Gothenburg, Sweden recently, revealing…