This past Saturday, Fedex brought a small unassuming box to the porch of my home. It didn’t take me long…
Articles by Stephen Shannon
On Thursday, July 2, the Food and Drug Administration made the announcement that Orkambi had been approved for people…
There are strains of mice in the lab that can run for what seems an endless amount of time. If…
Cystic fibrosis is a complex genetic disease that slowly takes the breath of those who have it by eroding the…
Cystic Fibrosis is not a disease new to modern history. It is speculated that people have died from the disease…
The CF community waits with warm hearts and open arms for the approval of ORKAMBI, the combination drug by…
The selection of articles I chose for this week is an attempt to capture recent events, along with one older…
The New England Journal of Medicine recently published findings regarding two, multinational, phase 3 studies on the…
What We Hope For I have found myself chasing a deferred hope waiting for my health to change, while watching…
Being informed on the science, drug developments, and public policy of CF is an excellent way to engage with the…