Author Archives: Wendy Henderson

CF Foundation Launches Video Series About Staying Fit

The Cystic Fibrosis Foundation has launched a series of videos aimed at helping cystic fibrosis patients get fit. The videos are aimed at different age groups and look at age-appropriate ways for patients to exercise and build their strength. MORE: 14-year-old Brayden Merrill is inspiring fellow cystic fibrosis patients to exercise…

5 Extreme Challenges That Have Raised Money for Cystic Fibrosis

  Fundraising is important to cystic fibrosis organizations like the U.K.’s Cystic Fibrosis Trust. The money helps support research into new therapies and possible cures, along with offering services to cystic fibrosis sufferers. There are many different types of fundraising events that appeal to the masses but some people want to really challenge…

This Wristband Can Detect Cystic Fibrosis and Diabetes

A wristband has been designed to help doctors detect diseases like cystic fibrosis and diabetes. The wearable device has a mechanism that can determine the levels of sodium and chloride in a person’s sweat — two properties which, if elevated, can indicate cystic fibrosis. MORE: Four common misconceptions about cystic fibrosis According…

Facebook Live: CFer Josh Llewellyn-Jones Shares His Health Tips

https://www.facebook.com/CFNewsToday/videos/1375611545818786/ We first came across Josh Llewellyn-Jones when he started sharing details about his upcoming 24-hour fitness challenge to raise awareness of cystic fibrosis. The 29-year-old, from Cardiff in the U.K., is a fitness fanatic who refuses to let his cystic fibrosis get in the way. We…

6 Ways to Help You Take Care of Your Lungs

We tend to take our lungs for granted, that is until we develop breathing difficulties. But even when living with a chronic lung disease, it’s important to look after these vital organs as best we can. The Rush University Medical Center has some useful advice to…

7 Inspirational CFers to Follow

Life with cystic fibrosis can be challenging, but it can also be extremely rewarding. Because cystic fibrosis patients shouldn’t meet each other face to face for fear of cross-infection, the online CF community is a close-knit group who all look out for each other and offer real support, guidance, and friendship. Some…

Traveling the USA With Cystic Fibrosis

In this video, travel along with cystic fibrosis patient Beau Rich on his amazing 2014 hiking, driving, skateboarding and swimming journey across the United States while maintaining CF care with new mobile medical devices. As seen in the video, one of the devices is an …


Featured Column

How I Discovered That PTSD Was Causing My Post-transplant Struggles

PTSD, mental health, communities, stress, grateful, work, trauma, rare disease day, transplant, CF community, National Blood Donor Month, birthdays, holidays
Columnist Lara Govendo addresses an issue that several readers may relate to: post-transplant PTSD, which can wreak havoc.

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