Wendy Henderson,  —

In this webcast from the Cystic Fibrosis Foundation, Leslie Hazel, the Director of Patient Resources for the organization, speaks to Dr. Jerry Nick from the University of Colorado about nontuberculous mycobacteria (NTM) in cystic fibrosis. Virulent bacteria strain poses particular risk to cystic fibrosis patients, a study warns.  The…

In 2015, Bradley Bjornstad shared a short film he made in 2011 with his wife Kari called Breathe: Battle with Cystic Fibrosis. The beautifully shot film features footage of Kari in hospital receiving treatment for an infection and highlights how susceptible people with cystic fibrosis are to infections…

https://www.youtube.com/watch?v=8t4EthxDUvs There are many people in the cystic fibrosis community who stand out for their advocacy and for being an inspiration to others–one of these people is Ben Mudge. Ben Mudge talks about cystic fibrosis and why it sucks. The 26-year-old from Belfast, Northern Ireland, is a comic book and…

This short film from The Leanne Fund–a cystic fibrosis charity based in Northern Scotland and founded in 2009— is all about Arienne and her parents, a family from Fort William, Scotland. Find out about nine different ways that cystic fibrosis can affect the body. The family talk…

In this raw and emotional video, shared in 2014, Morgan Grindstaff (a.k.a. Cystik1) tells us what it’s like to have cystic fibrosis, how the symptoms affect his everyday life and how he is subjected to well-meaning yet unsolicited advice from people who generally know nothing about the condition.

Exercise is crucial for people with cystic fibrosis to help slow down the decline of lung function and to maintain overall health, but over the holidays it can be difficult to find the time. With this in mind, we’ve put together a list of tips to help you find time…

In this video from Ashley’s Roses, four of Ashley’s friends with cystic fibrosis share their journey with the condition. Read eight tips to manage your cystic fibrosis.  Thirty-four-year-old Nick, 18-year-old Abbie, 32-year-old Angel and 31-year-old Melissa talk about their early symptoms and diagnosis, the…

https://www.youtube.com/watch?v=cibUxH6qUio In this Cystic Fibrosis Foundation webcast, burkholderia cepacia complex, more commonly known as B. cepacia is explained and the effect it has on patients with cystic fibrosis. A study finds that chronic lung infections in CF patients are worsened by viruses. Find out more. Dr. John LiPuma…

In this video from the UK’s Cystic Fibrosis Trust, CF patient Emma Lake asks “what’s next in cystic fibrosis healthcare?”. Find out about nine ways that cystic fibrosis can affect the body. Dr. Janet Allen talks about the two types of factors that determine the care needed…

The importance of nutrition and healthy eating for cystic fibrosis patients cannot be overstated. Many CF patients have problems getting the nutrients they need out of the foods they eat and struggle to maintain a healthy body weight. In this series of webcasts from the Cystic Fibrosis Foundation, various aspects of diet…