I recently agreed to facilitate one of the Cystic Fibrosis Foundation’s CF Circles, which are virtual small-group discussions about a specific topic. The focus of this particular gathering was “Living with cystic fibrosis (CF) over 40.” After my double-lung transplant in 2020, I decided to take a…
To follow my column last week about the rate of divorce after surviving advanced cystic fibrosis (CF) and double-lung transplant, this week I’ll focus on the intricate balance of living while dying. Don’t get me wrong, the improvement in my lung health since my transplant four years ago…
In a private Facebook group for adults living with cystic fibrosis (CF), a post jumped out at me asking if anyone had gone through a divorce after their double-lung transplant. The post instantly caught my attention because that’s my current situation. What disturbed me was the number of responses…
In the first few days after my double-lung transplant in 2020, I was looking at a hand-held mirror and saw a central venous catheter protruding from the left side of my neck. A large, bulky bandage covered the right side. Little did I know then that the bandage represented something…
The power of water is underrated. If you Google it, you’ll see you can delve into multiple aspects of water’s properties, including how it supports thermal energy, hydropower, transportation, and anti-erosion efforts. It’s a universal solvent (because of its molecular structure), it’s often symbolic (as in the Bible), and…
Is it just me, or did January feel like an entire year all on its own? From drastic political shifts to devastating wildfires, extra-cold temperatures to egg shortages, a surge in influenza activity to outbreaks of tuberculosis, 2025 has been exhausting so far. On top of everything, I feel a…
This month, my beautiful daughter, Claudia, will celebrate her 29th birthday. I was 24 and living with cystic fibrosis (CF) when I became her mother. It’s now been four years since my double-lung transplant, and I’m currently fighting COVID-19 for the fourth time in four years. As the…
The end of 2024 is upon us, which means it’s time to reflect on the past year and evaluate ourselves and our decisions. It’s also a time for resolution — the promise to implement positive life changes in the new year. Many New Year’s resolutions focus on exercise, with goals…
They say that the older you get, the faster time passes. At 53 years old, I completely agree. As I look back at the columns I’ve written in the past, I can’t believe we’re approaching the holiday season again. Don’t get me wrong — I’m thankful for it.
Many of the thoughts that cross my mind daily are specific to cystic fibrosis (CF). Recently, I’ve recognized that they’re not things that most people, including my family and healthy peers, have to think about. I’m not upset that the following topics are frequently on my mind. It’s just…
Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.
Get regular updates to your inbox.
