“OK, I have to go, Han. I’m sorry. I love you, OK?” “I love you, too.” My boyfriend leaned down, kissed my cheek, and walked through the hospital doors. He had just pushed my wheelchair inside the lobby, but this was only a drop-off — a…
Note Taken - a Column by Hannah Buck
How to Fight ‘FOMO’
FOMO. Fear of missing out. Ever heard of it? I don’t have a lot of phobias. Yeah, being alone in a dark room creeps me out, but I’m not afraid of needles, heights, snakes, public speaking, or even dying. When my boyfriend and I get…
The Porch with Mama
This afternoon, while browsing the fiction shelves at a local bookstore, I saw my own ghost. As I turned over a colorful paperback copy of Meg Wolitzer’s “The Uncoupling,” a small, optimistic cough flew past my left ear. At first, one. Then…
What Have You Done Today?
While making small talk with a friend last weekend, I asked what she had done that day. She shared that she had gone to class, worked in her professor’s research lab, and hung out with another friend — all before our conversation at 4 p.m. “Dang,…
Proving Yourself Wrong
There’s a certain amount of pride that often accompanies the proving of one’s own capability. In other words, exceeding someone’s expectations is literally the best. Sometimes, the “someone” you’re aiming to prove wrong isn’t on your team — they anticipate your failure because they think you’re lame. (Sad!) Other times, they…
A Message to Those Who Say ‘Ew’
Cystic fibrosis is nasty. Bacteria makes my breath stink. Malabsorption makes me fart a lot. I cough so much that my face turns red, and blobs of mucus often fly out of my mouth and onto the shirts and/or pants of those standing in my general area. If I could…
I’ve always known that I wanted to be a writer. There were some rebel years, of course — short-lived times growing up when I claimed to have aspirations of teacher-hood or superstardom. There was even a year when I wanted to be a hydrologist, as I couldn’t seem…
Your CF Community

Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.
Recent Posts
- I am excited and anxious to finally meet my donor family
- New study links Kaftrio treatment to lower insulin doses in CFRD
- While living with cystic fibrosis, every day is Rare Disease Day for me
- CF underrecognized outside U.S. and Europe, better testing needed: Study
- What my relationship taught me about living with cystic fibrosis