Columns

Living With a Focus on Health Keeps Chronic Conditions in Check

Due to cystic fibrosis, I’ve been steadfastly focused on my health my entire life. There hasn’t been a time when I wasn’t thinking about my health. As such, I’m constantly assessing how my surroundings will affect my health, conducting continuous health maintenance, and ensuring all of the elements of…

Confronting My Fear of a Lung Transplant Because of CF

Fear often triggers one’s fight-or flight instincts. Depending on the circumstances, when it happens to me, I’ll either persevere through an unwanted situation or become paralyzed by fear. When I become frozen, I don’t want to do anything, and I let the fear caused by the situation just flush…

How the Concepts of Family Systems Theory Have Affected Me

Though family systems theory isn’t new, it’s new to me. I recently discovered the writings of psychologist Harriet Lerner, and her ideas — family systems theory filtered through a feminist lens — have in many ways been a godsend. They’ve helped me think through my first family’s relationship…

Celebrating Each Birthday Is a Gift With CF

Birthdays aren’t just another day for me — they’re a reminder that I’m still alive. Last month, I turned 36. I’ve lived my entire life thinking I would die young. Growing older with cystic fibrosis (CF), living with minimal inhibition, and dreaming about the future all feel like…

Why I Wish Mask Mandates Were Still in Place

One of Disney’s latest creations is “Disenchanted,” the sequel to the 2007 musical film “Enchanted.” Without revealing any spoilers, one of the characters makes a wish to return their living conditions to a place of familiarity and comfort. One song, “Fairytale Life (The Wish),” reminded me of the…