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My time in nature has given me a broader perspective on CF

The benefits of being in nature are well-documented. There are the physical benefits, such as improving blood pressure and immune activity. And then there are the mental benefits, with people spending time in nature seeing reduced rates of depression and anxiety and increased vigor. These findings don’t…

I’m giving loved ones permission to remark on my CF symptoms

“You smell sick. I literally can smell the Pseudomonas.” I was a young teenager, and in classic teenager fashion, Mom’s comment aggravated me. For one, no teenager haunted by puberty’s horrors warmly welcomes a parent’s wrinkle-nosed remark about odor. Second, in all my stubborn, hormone-raging years, I worked hard to…

8 life lessons since having my double-lung transplant

My life with chronic illness has been a tumultuous ride on multiple levels, but I’m also grateful for the life I’ve been granted, especially since my cystic fibrosis (CF) spurred my double-lung transplant in 2017. I thought it’d be fun to share eight lessons of life and health that…

Remembering my friend, the writer Steve Silberman

My friend Steve Silberman died a year ago on Aug. 29, 2024. I was familiar with Steve before he knew me. Steve had written a highly popular and applauded person-centric history of autism titled “NeuroTribes: The Legacy of Autism and the Future of Neurodiversity.” His writing, much like my…

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