My Life (and Death) Is More Than Statistics and Dead Dreams

It’s not my birthday or my lung transplant anniversary or anything. But today, I’m thinking about being old-ish. I’m thinking about how Mom realized my life expectancy in college biology, and how I realized it in middle school biology. I’m thinking about the times I drove myself nuts by…

Is Gender Bias in Healthcare Shortening My Life?

“I am sick of being a woman,” I say far too often. “Especially a sick one.” Maybe you’ve read this before. I’ve probably written it. But it begs repeating. It’s hard seeking healthcare as a woman because our concerns are quick to be dismissed, our symptoms swept under the rug.

A Day in the Life of a Life That Can’t Live

I am staring at a blank page trying to figure out what to write, and all I want to say is: “I’m so stressed.” I want to tell you about all the crazy pressures and stressors I’m under because it’s all I can think about. How can I write anything…

Surveys Play a Critical Role in Improving the Patient Experience

I used to dislike surveys, polls, and questionnaires. I understood why they existed — customer or patient feedback is important — but I never really saw anything change once I took a survey. I hadn’t considered that perhaps my feedback was unrealistic or didn’t represent the entire community. It wasn’t…

Having a Rare Disease Is a Lot Harder Than You Think

Because we just honored Rare Disease Day on Feb. 28, I’d like to share what it’s like living with one. Having a rare disease means strangers telling you what your rare disease means, even though they’ve never lived or worked with it themselves. It means existing with stereotypes…

Featured Column

How I Discovered That PTSD Was Causing My Post-transplant Struggles

PTSD, mental health, communities, stress, grateful, work, trauma, rare disease day, transplant, CF community, National Blood Donor Month, birthdays, holidays
Columnist Lara Govendo addresses an issue that several readers may relate to: post-transplant PTSD, which can wreak havoc.

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