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When I first met my lung transplant surgeon, she remarked that cystic fibrosis patients have a great post-transplant life expectancy because we tend to be best prepared for it. We know how to shovel pills by the handful into our mouths two to three times a day.

Having cystic fibrosis makes life sometimes stressful, sometimes lonely, sometimes painful, and oftentimes scary. But it can also make life seem more valuable, brighter, more optimistic, and more fun. Figuring out how to balance the good and the bad, and come out from tough situations on the positive end can be challenging,…

Military hospitals handled most of my cystic fibrosis (CF) care. Many members of the military worship pain (“Get some! Rub some dirt in it, hooah!”), and assume you do, too. CFers inevitably encounter intense pain throughout the treatment of their disease.

Kathleen belaying Brad as he climbs. Not quite near the top yet. (Courtesy of Kathleen Sheffer) There are times I feel especially mortal. Such as when I’m feet from the top of a rock climbing wall, and I realize I’m relying on a single rope…

Second in a two-part series about the role of anger in a CFer’s life. Last week, I wrote about a lifetime of anger because of cystic fibrosis. The fury boiled over during an episode of ICU psychosis and septic shock. I finally…

First in a two-part series about the role of anger in a CFer’s life. Life as a child with cystic fibrosis was grueling. I had frightening surgeries, hours of treatments each day, a cluster of never-ending infections ravaging my lungs and digestive system, and…

Mom and I had flown to Denver to meet a specialist and strategize treatment for my nontuberculous mycobacterium. Part of the clinic visit concerned treating my barren appetite and nonstop nausea. We’d tried nearly every anti-nausea prescription by then, and…

I feel the freest when being told what to do. Take 1 tablet by mouth three times daily for 14 days. Flush each lumen of intravenous catheter with 5 mL as directed. Do not exhale into the mouthpiece…

Fulfillment to me means achieving a dream, pursuing a passion, striving to be happy every day, and finding joy in what I do. To say I did my best and made every moment count. I believe having those dreams and feelings of fulfillment comes from motivation. Motivation to do and be…

Ba-doop. A notification pops up. It’s an old friend: “Hey, Brad. How are you? It’s been so inspiring following your journey!” “Aw! I’ve been doing great, thanks.” Abruptly: “So, I know of a fantastic product…