I want to introduce you to my gastric pacemaker. I’m not sure how many people know about her or what she does, and how she may have saved my life on more than one occasion. She wasn’t a fast fix. The girl is a slow worker. But over time, she’s…
Life in the Grey – a Column by Bailey Anne Vincent
By the time you read this, I will be going into surgery. I said that in my last column, which literally was titled “I’m Having a Scary Neck Surgery,” and I just had another one a month before this one, and one three months before that, and another…
“If someone offered me enough money to take a break from work and recover, would I stop working?” I asked myself this the other day. My surgeon had just told me I’m having spine surgery again. I’ve known this for a while — over six months, really — but…
I wrote an entire column this morning and then threw it away. All 800 words — or 790, if I don’t want to annoy my editor. I wrote it, reread it, and thought, “This doesn’t feel right.” It doesn’t feel right because nothing feels right — because something is terribly…
Get the second opinion. I used to think second opinions were for privileged celebrities who dared to defy the doctoral hierarchies of the world. Those who don’t mind being branded as a “doctor hopper” or an “inconsistent patient” because they can pay for whatever bills or bylines that come their…
“I am not doing well at all.” I don’t like saying this. I don’t like saying this because I have children who read things. I don’t like saying this because I have students who see and worry. I don’t like saying this because I don’t like saying this. But…
I have thin privilege. I’ve said this before and I’ll say it again: This is significant because only those who benefit from the system can help break the system — and it needs to be broken. “I saw a comment on Instagram where someone pointed out how sexist the concept…
What you read here is a lie. I don’t always know what life looks like from the outside in, but I know that most of us can never tell what’s really going on in someone else’s. Even when we share a lot online. Even when we write a…
I didn’t write my column last week. It’s the first time I’ve missed a column in months. If I have a surgery or a conflict, I write ahead of time, because one of the best (and most challenging) things about working for a company run by sick people is…
I wish someone actually talked about marriage. And not just marriage to a sick person, though I am one. And not just how to fix a marriage. I don’t want someone to offer advice on what I’m doing wrong (plenty). I just want someone to talk about it honestly. I’ve…
Your CF Community

Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.
Recent Posts
- Having friends in the CF community makes all the difference to me January 16, 2026
- A trial that fails to reach its clinical endpoints isn’t necessarily a ‘failure’ January 15, 2026
- CF treatment Alyftrek tops Trikafta for boosting life quality: Analysis January 15, 2026
- Antibody therapy to clear CF lung infections fares well in early trial January 13, 2026
- KB407 gene therapy shows promise for all CFTR mutations in CF January 12, 2026