Thanks to the Cystic Fibrosis Foundation (CFF), people with cystic fibrosis (CF) in the United States will receive free access to the online wellness and exercise platform Beam through the end of this year. “Wellness plays a critical role in an individual’s quality of life no matter what challenges…
News
A precise gene-editing tool that reverses single DNA mutations may lead to genetic therapies for people with cystic fibrosis (CF), a study suggests. The study, “Programmable C:G to G:C genome editing with CRISPR-Cas9-directed base excision repair…
One need look no further than the name of the Cystic Fibrosis Foundation‘s Impact Grant program to figure out what it does — helping those affected by cystic fibrosis (CF) serve their disease community in creative ways that matter. The CF Foundation is currently accepting applications for the 2021 award…
Molecular analysis of single cells lining the digestive tract found high CFTR activity — the gene associated with cystic fibrosis (CF) — in some cells in the duodenum, or first part, of the small intestine. A comparison of cells lining the stomach of…
Two bacterial species known to be frequent sources of lung infection in people with cystic fibrosis (CF) — Pseudomonas aeruginosa and Staphylococcus aureus — can feed each other with a nutrient called purine that both need to thrive, a study shows. Such interaction could determine the course of…
The use of oral nutritional supplements is associated with a higher intake of nutrients and better levels of certain vitamins in cystic fibrosis (CF) patients with poor respiratory and nutritional status. These results are found in the study “Oral nutritional supplements in…
Too often, cystic fibrosis (CF) patients or their caregivers do not follow proper hygiene procedures when cleaning, disinfecting and storing nebulizers, risking them being a source of lung infections. But proper training can help, a Turkish study reports. Healthcare providers should also be more aware of the potential for poor…
Lonodelestat (also known as POL6014), Santhera Pharmaceuticals’ investigational therapy to treat chronic lung inflammation, was safe and effective at blocking the activity of a pro-inflammatory biomarker in patients with cystic fibrosis (CF), according to data from a Phase 1b trial. “We are very much encouraged by the…
The University of Portsmouth, U.K., is partnering with Josh Llewellyn-Jones, a record-breaking endurance athlete who has cystic fibrosis (CF), to drive a scientific PhD research program that aspires to improve the lives of people with the disease. Llewellyn-Jones defied the odds by living past his 30s and…
The United States Adult CF Association (USACFA) is accepting applications to award a total of $15,000 in scholarships to four people with cystic fibrosis (CF)pursuing degrees in the creative arts and other fields. Two of the scholarships — worth $5,000 each — are part of the USACFA’s…
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