Social Clips

Share These Facts for #CFAwarenessMonth

To help raise awareness of cystic fibrosis and what life is like with the disease, the Cystic Fibrosis Foundation is encouraging people to share facts about the disease on social media during Cystic Fibrosis Awareness Month. Here are some important facts about cystic fibrosis to share on Twitter, Facebook and…

7 Inspirational CFers to Follow for #CFAwarenessMonth

Life with cystic fibrosis can be challenging, but it can also be extremely rewarding. Because cystic fibrosis patients shouldn’t meet each other face to face for fear of cross-infection, the online CF community is a close-knit group who all look out for each other and offer real support, guidance, and friendship. Some…

5 #CFAwarenessMonth Videos You Have to Watch

In honor of Cystic Fibrosis Awareness Month, we’ve put together a few must-see videos from people in the CF community who are helping to raise awareness of cystic fibrosis. MORE: May is #CFAwarenessMonth In this video from Ashley’s Roses, Ashley talks about ways that people can raise awareness…

What Is a ‘Spoonie’?

If you’re active on the Internet, particularly in groups and forums regarding chronic illness, you’ve definitely noticed the term “spoonie” being thrown around. MORE: Some patients suffering with CF are celebrities or became celebrities because of their fight against the disease. Read their stories. Spoonie is…

What to Know About Germs and Cystic Fibrosis

May was Cystic Fibrosis Awareness Month. All month the CF community worked together to raise the profile of the disease and to help educate the public about what life is like for those who live with the condition. Cystic fibrosis is a genetic disease where mucus builds up in major organs like the…