Social Clips

You must have been hibernating if you haven’t heard of or seen the latest craze to sweep the world: it’s called bottle flipping. Children around the globe are annoying their families and teachers by spending hours tossing half full plastic bottles of water to see if they can make it…

What’s it like taking care of someone who’s had a lung transplant? In this video from Gifted Life, 26-year-old Lauren and her mom explain what it’s like looking after someone who has a chronic lung condition and the differences between pre- and post-transplant caregiving. The symptoms…

https://www.youtube.com/watch?v=l3oQZJXV3qQ In this “Making it Matter” podcast video made by Gunnar Esiason for Boomer Esiason Foundation, Gunnar and Julia Rae talk about cystic fibrosis being an invisible illness, meaning people won’t always be able to tell someone has a chronic disease just by looking at them. Read about nine things…

Tim Tebow is a former football player and now a professional baseball player who has set up a non-profit organization aimed at helping underprivileged children around the world. Tebow also founded the W15H initiative,  where he makes some of his fans’ dreams come true by meeting children with long-term illnesses.

Adults with cystic fibrosis are like any other, most want to find the person of their dreams, settle down, get married and have children. But how does cystic fibrosis affect a man or woman’s ability to have children? We’ve compiled a list of facts about cystic fibrosis and fertility based…

When the California-based singer-songwriter Rivvrs contacted Bradley Bjornstad to make the official video for his single “Conquer,” Bjornstad was humbled. The video wouldn’t just showcase the beautiful music of Rivvrs but also be a dedication to his late wife, Kari, who died in August 2015 following complications of cystic fibrosis.

In this webcast from the Cystic Fibrosis Foundation, Leslie Hazel, the Director of Patient Resources for the organization, speaks to Dr. Jerry Nick from the University of Colorado about nontuberculous mycobacteria (NTM) in cystic fibrosis. Virulent bacteria strain poses particular risk to cystic fibrosis patients, a study warns.  The…

In 2015, Bradley Bjornstad shared a short film he made in 2011 with his wife Kari called Breathe: Battle with Cystic Fibrosis. The beautifully shot film features footage of Kari in hospital receiving treatment for an infection and highlights how susceptible people with cystic fibrosis are to infections…

https://www.youtube.com/watch?v=8t4EthxDUvs There are many people in the cystic fibrosis community who stand out for their advocacy and for being an inspiration to others–one of these people is Ben Mudge. Ben Mudge talks about cystic fibrosis and why it sucks. The 26-year-old from Belfast, Northern Ireland, is a comic book and…

This short film from The Leanne Fund–a cystic fibrosis charity based in Northern Scotland and founded in 2009— is all about Arienne and her parents, a family from Fort William, Scotland. Find out about nine different ways that cystic fibrosis can affect the body. The family talk…