In this raw and emotional video, shared in 2014, Morgan Grindstaff (a.k.a. Cystik1) tells us what it’s like to have cystic fibrosis, how the symptoms affect his everyday life and how he is subjected to well-meaning yet unsolicited advice from people who generally know nothing about the condition.
Social Clips
Exercise is crucial for people with cystic fibrosis to help slow down the decline of lung function and to maintain overall health, but over the holidays it can be difficult to find the time. With this in mind, we’ve put together a list of tips to help you find time…
In this video from Ashley’s Roses, four of Ashley’s friends with cystic fibrosis share their journey with the condition. Read eight tips to manage your cystic fibrosis. Thirty-four-year-old Nick, 18-year-old Abbie, 32-year-old Angel and 31-year-old Melissa talk about their early symptoms and diagnosis, the…
According to the New York Times, “good decisions start with accurate information.” Here are four of the most common misconceptions non-patients have about cystic fibrosis. 1. Cystic fibrosis can be contagious. Some people are afraid they’ll catch cystic fibrosis if they are in contact with a patient, but it’s…
https://www.youtube.com/watch?v=cibUxH6qUio In this Cystic Fibrosis Foundation webcast, burkholderia cepacia complex, more commonly known as B. cepacia is explained and the effect it has on patients with cystic fibrosis. A study finds that chronic lung infections in CF patients are worsened by viruses. Find out more. Dr. John LiPuma…
It’s no surprise that sometimes people say things they don’t want to–or mean to. Especially when they’re talking to someone with a disease like cystic fibrosis, that is not fully understood by those who don’t live with it. To help you learn more about what you shouldn’t say to chronically…
In this podcast video made by Gunnar Esiason for the Boomer Esiason Foundation, Gunnar and Julia Rae talk about dating while living with cystic fibrosis (CF). Listen to the podcast where Gunnar and Julia talk about cross-infection risks for CF patients. This topic came from a…
This Demystifying Medicine animated video from McMaster University explains what cystic fibrosis (CF) is in a very simple way. According to the New York Times, “good decisions start with accurate information.” Learn more about the four most common misconceptions non-patients have about cystic…
In this Boomer Esiason Foundation video, Brayden Merrill, an amazing 14-year-old CFer, shares how he stays healthy by doing track, cross country and playing soccer. MORE: There are many benefits of exercise and activities that stimulate breathing for cystic…
In this video from the UK’s Cystic Fibrosis Trust, CF patient Emma Lake asks “what’s next in cystic fibrosis healthcare?”. Find out about nine ways that cystic fibrosis can affect the body. Dr. Janet Allen talks about the two types of factors that determine the care needed…
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