In this podcast video made by Gunnar Esiason for the Boomer Esiason Foundation, Gunnar and Julia Rae talk about what it’s like having a sibling who also has cystic fibrosis. Listen to the podcast where Gunnar and Julia talk about cross-infection risks for CF patients. Julia invites…
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As a cystic fibrosis patient, you will regularly need to visit health care centers, from your doctor’s office to the hospital to the nutritionist. These are all places other patients have visited, which puts you at risk of picking up other people’s germs and for cross-infection. However, according to the…
Exercising and maintaining good health is encouraged for everyone, but when it comes to cystic fibrosis (CF) patients, regular exercise has been shown to have an even bigger impact. It’s believed that exercise can help reduce lung-function decline and help keep stress levels low and improve sleep. Here are four exercises…
This Sewing Hope video from The Feed is all about the awesome Campbell Remess, a 12-year-old boy from Hobart, Tasmania, Australia. Unlike other boys his age, Campbell is not interested in playing video games or watching movies–he prefers to spend all of his free time hand-making teddy…
This Taste of Country video shares the heartwarming story of a cystic fibrosis patient who got the opportunity to sing and play his guitar onstage with his favorite country star. Find out more about Rose Ostrowski, a sixth grader who is singing in shopping malls to raise awareness…
A recent lab study found that certain mold toxins found on corn and nuts could aggravate symptoms for cystic fibrosis patients. Understand more about how cystic fibrosis affects the lungs here. Called aflatoxins, and already known to cause cancer and liver damage, the substance was found to…
According to the Cystic Fibrosis Foundation, there are seven major airway clearance techniques (ACTs) for patients with cystic fibrosis. Airway clearance is needed to help clear away mucus from the lungs to help prevent infections and to improve lung function. Children will need an adult to assist with ACTs,…
https://www.youtube.com/watch?v=2wEMLfSko_0 This video from AffloVest introduces CFer Beau Rich as he reflects on his journey across America. The 24-year-old from Florida traveled more than 20,000 miles and visited 20 states on his epic journey. Data shows Afflo Vest helps with air clearance in cystic fibrosis patients. Read more here. …
In this podcast video made by Gunnar Esiason for Boomer Esiason Foundation, Gunnar and Julia Rae talk about the importance of nutrition for cystic fibrosis patients. How does cystic fibrosis affect the pancreas? Find out more here. The two cystic fibrosis advocates have different nutritional needs as…
Exercising and keeping as fit as possible is encouraged for everyone, but especially for people with cystic fibrosis. Regular exercise has been shown to reduce lung-function decline in cystic fibrosis patients, and help keep stress levels low and improve sleep. Here are nine ways to motivate yourself to get out…
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