Recently, a team of scientists from Ulster University, in Northern Ireland, United Kingdom, had joined a global research study seeking alternative treatment options for patients with cystic fibrosis-related diabetes (CFRD). In this Cystic Fibrosis Trust video, Ciara Hillyer, a photographer and vlogger,…
Do you know what lungs and a tennis court have in common? Find out here! In this Cystic Fibrosis Foundation video, meet Carrie Giddens, a 30-year-old cystic fibrosis patient and her husband, Craig. Also, learn more about how through IVF…
https://www.youtube.com/watch?v=zFhN3qxmPPM What’s it like to be a Salty Girl? In this The Mighty Site video, learn more about the work of photographer Ian Pettigrew with his amazing book Salty Girls. This project captures CF patients’ everyday reality and to celebrate the women…
Cystic fibrosis is a life-threatening, genetic disease that affects patients’ ability to breathe and causes persistent lung infections. There is currently no cure for cystic fibrosis, but there are treatments designed to help patients maintain their health and have longer, more fulfilling lives. There are cystic fibrosis medications approved for patients with the disease, but…
Cystic fibrosis (CF) is a genetic and chronic disease that affects the normal function of the lungs and other organs, leading to persistent lung infections and progressive breathing difficulties. Patients with cystic fibrosis experience a series of symptoms, including very salty-tasting skin, persistent coughing with phlegm, frequent lung infections including pneumonia…
https://www.youtube.com/watch?v=L0Bsnbq8tqo Recently, a team of scientists from Ulster University, in Northern Ireland, United Kingdom, had joined a global research study seeking alternative treatment options for patients with cystic fibrosis-related diabetes (CFRD) In this Arkansas Children’s Hospital video, learn more about cystic fibrosis related diabetes.
Cystic fibrosis is a chronic disease of which there is no current cure. However, improvements in diagnosis have led to better treatment plans. Most children are now screened for CF at birth through newborn screening and the majority are diagnosed by age 2. Parents are the primary caregivers. 1. Caring for…
Here are six organizations doing remarkable work either in research or alongside patients and their families which you can help directly or bring awareness to. Meet the Take a Breather Foundation. Their goal is “to allow children living with cystic fibrosis, along with their families, to ‘take a breather’…
In this video by Bradley Bjornstad, watch a beautiful documentary he made for his wife before she lost her battle with cystic fibrosis. Here are 8 other tips to manage your cystic fibrosis. “This piece is by far the…
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