Meet the Take a Breather Foundation. Their goal is “to allow children living with cystic fibrosis, along with their families, to ‘take a breather’ from CF and focus on creating lasting memories that will stay with them for a lifetime.” “Our name is actually our mission. We provide a ‘breather’ for…
Social Clips
Fight Like a Boss is a documentary that follows Nick DiBrizzi Jr., a cystic fibrosis patient, while he is waiting for his double lung transplant. “This story is one of love, support, hope, family and never giving up.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs…
In this Cystic Fibrosis Foundation video, hear why 54-year-old cystic fibrosis patient Linda Bowman participates in clinical trials. “We are on the road to finding a cure. And the more CF patients are involved in clinical trials the better, and the quicker and the faster it’s gonna come.   “…
In this video by Cystic Fibrosis Victoria, listen to Dr. Sean Fabri explain all about carrier screening, including the science behind it, its implications and the many options available for people who suffer from or carry cystic fibrosis. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs…
Cystic fibrosis (CF) is an inherited and chronic disease related to a defect in the cystic fibrosis transmembrane conductance regulator (CFTR) gene. Patients produce an abnormally high amount of sticky and thick mucus that accumulates around the organs, including the lungs, making it difficult for patients to breathe properly and…
Nick Talbot, a 40-year-old man living with cystic fibrosis, is attempting to become the first person with CF to ever climb the tallest mountain in the world – Mount Everest. “Hi my name’s Nick, I’m 40 and have cystic fibrosis. I’ve been really fortunate in life, I have a good career and…
Recently, there has been lots of people posting selfies of themselves breathing through a straw. The idea behind the internet trend is to bring awareness as to how a cystic fibrosis patient feels on a daily basis. This is all part of a cystic fibrosis awareness campaign benefitting the Cystic Fibrosis Trust.
In these Cystic Fibrosis Trust videos, watch Arthur’s parents, teachers and a cystic fibrosis nurse talk about his adaptation during his first year at school while living with cystic fibrosis. Watch the video below to hear Q&As with teachers, and a nurse offering advice to other students, teachers and parents going through the…
Recently, a study found that individuals carrying the mutated gene for cystic fibrosis (CF) show an increased risk for asthma, in particular, CF carriers from Asian countries. In this video by the blogger Brooke Wolcott, listen to her talk about her life with cystic fibrosis. “I hope y’all enjoy the video, and that…
In this Cystic Fibrosis Trust video, join tv personality Gavin Ramjaun and Grace, a 14-year-old distance runner living with cystic fibrosis. Both Gavin and Grace are in training for the London Marathon. Cheer on Gavin, Grace, and Team CF at the London Marathon. To learn more about cystic fibrosis,…
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