Social Clips

Today, I’m Brave – Breana, The Tandem Surfer CFer

“15-year-old Breana approaches everything in her life with bravery- whether it’s living with cystic fibrosis or performing tricks while tandem surfing. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…

New Development in Drugs to Fix the CFTR Protein

In this Cystic Fibrosis Foundation video, learn more about the new development in drugs to fix the CFTR protein. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…

#TBT Remembering Singer/Songwriter and CFer Alice Martineau

Today we remember the life of pop singer and songwriter Alice Martineau in this BBC Three Documentary “The Nine Lives Of Alice Martineau”, filmed several months before her death. Alice lost her battle to cystic fibrosis back in March of 2003 at home. To learn more about cystic fibrosis,…

Celebrity Ski 2016 for Cystic Fibrosis

The video shows footage from the 31st American Airlines Celebrity Ski Weekend, raising money for cystic fibrosis research and development. So far the incentive has raised over $30 million dollars. “Due to recent advances in gene and drug therapy we are closer than ever to developing a viable treatment,…

Being an Adult with Cystic Fibrosis

In this DKBmedLLC video, meet Amy, 30-years-old, who struggles with frequent illnesses and exacerbations. She feels her treatments are ineffective and that she’ll never have a normal life. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest…

Pseudomonas Aeruginosa in Cystic Fibrosis

https://www.youtube.com/watch?v=3daNMEnW1Kc Pseudomonas aeruginosa is the key causative agent of cystic fibrosis (CF) infections. This aerobic, gram-negative, opportunistic hospital pathogen can grow and proliferate in patients with a suppressed or compromised immune system, especially in hospitals and other healthcare settings. CF is a genetic disorder and passed on to offspring via…

Real Life with Cystic Fibrosis

Watch the Frey’s explaining how is day-to-day real life with cystic fibrosis for them. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…

Last Week’s Hot Topic on Cystic Fibrosis

Last week’s hot topic on Cystic Fibrosis titled Phase 3 Trial of Inhaled Antibiotic to Treat CF-related Lung Infections Supported by $20M in New Financing was written by Daniela Semedo. The article is focused on Savara Pharmaceuticals recently announcing that it has closed a $20 million Series C…