https://www.youtube.com/watch?v=O0OAKfCwyyY In this video presentation by Gene Fo, learn more about Cystic Fibrosis & Nutrition. To learn more about Cystic Fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…
In this video from the Cystic Fibrosis Foundation, #learn how precision medicine is changing the way we develop new therapies and treatments for people with CF.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news…
In this video, the Cystic Fibrosis Foundation raises awareness about cystic fibrosis and its limitations. Spread the word, ‘Share it With Those Who Care’. To learn more about Cystic Fibrosis enter here: https://bit.ly/1QltnFs Stay Updated with all the latest news here: https://bit.ly/1jNDqsz…
Watch youtuber Larry Brian talking about his experience with Orkambi. Learn all about Orkambi (lumacaftor/ivacaftor) here: https://bit.ly/1jCoQUT If you wish to learn more about Cystic Fibrosis enter here: https://bit.ly/1QltnFs Note: Cystic Fibrosis News Today is strictly a news and information…
Read the Articles Here: Orkambi (lumacaftor/ivacaftor) For Cystic Fibrosis 2 New Cystic Fibrosis Studies to be Stepping Stones to Future Research An Undeniable Hope: Recent CF Breakthroughs Show That a Cure Can Be Found …
https://www.youtube.com/watch?v=ueO6UP1m8WU In this video from the RBandH, learn more about “ACBT, a breathing technique that combines relaxed breathing with deep breaths and a forced expiration to help clear mucous from the lungs. It is performed in a cycle which is repeated until the lungs are clearer or for a pre-determined time.”…
In this video by Marissa Parks, see what side effects she’s been dealing with while taking Orkambi. “I hope you enjoyed my video! If you have any questions about Orkambi or have a different experience please share! I would love to read how others are handling the side effects they’ve encountered.
According to the Daily Mail, singing Taylor Swift songs could help Ella, a 12-year-old girl with cystic fibrosis, to add years to her life and repair her damaged lungs. Last Monday Ella achieved another goal: she actually met her idol. Ella Sinclair from Queensland’s Sunshine Coast was…
In this video by SickKids, see how their “partnership with Cystic Fibrosis Canada is able to change the face of cystic fibrosis. Faces like Melissa Benoit’s”. To learn more about Cystic Fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here:…
Emily’s Entourage raises money and awareness to help find a cure for rare mutations of Cystic Fibrosis. Nearly 70,000 people worldwide with CF are waiting with bated breath for life-saving breakthroughs. They’re mobilizing friends, families and communities to join Emily’s Entourage on the quest for new treatments and a cure.
Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.
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