According to the Daily Mail online, Taylor Swift organised a surprise meeting with a 12-year-old cystic fibrosis patient, Ella Sinclair, who sang the pop star’s songs to help her repair her lungs and add years to her life. Ella met Taylor Swift on Monday after the US singer flew her to…
Social Clips
Watch this video from the Cystic Fibrosis WA, suitable for children aged 3-8, which is all about hand washing and ways to minimize spreading germs, particularly to people who have cystic fibrosis. This film is a great one to show to your children at home or in…
Read the Articles Here: Orkambi (lumacaftor/ivacaftor) For Cystic Fibrosis Pulmonary Function in CF Improves with High Frequency Chest Wall Oscillation Cystic Fibrosis Phase 2 Trial of Drug Aiming to Stabilize Key CF Gene Underway …
In this video from the Cystic Fibrosis Trust, meet Elliott. He’s like 90% of people with cystic fibrosis and has the genetic F508del mutation The Cystic Fibrosis Trust is funding research into this underlying cause of cystic fibrosis, to help create a brighter future where children like Elliott live longer…
Meet “Emily Schaller, a 31-year old living, breathing, and succeeding with cystic fibrosis. Here, she shares her life-changing relationship with exercise and her determination to spread awareness about CF. To learn more about Cystic Fibrosis click here: https://bit.ly/1QltnFs Stay updated on all the latest news here:…
https://www.youtube.com/watch?v=I6w5OCM7YhA In this video by Domenique Mastronardi and Matthew Prebeg, learn the basics of Cystic Fibrosis. To learn more about Cystic Fibrosis enter here: https://bit.ly/1QltnFs Stay Updated with all the latest news here: https://bit.ly/1jNDqsz…
https://www.youtube.com/watch?v=hIIEYhKsXCA This week, cystic fibrosis patient Ben Mudge, who has to work out five times a week just to stay alive, made it onto the Men’s Fitness cover, taking him one step closer to his dream of becoming a Calvin Klein model. See him react to being on the cover above.
https://www.youtube.com/watch?v=cWs5ar_qk_o Do you remember CFers Christina & Ali? They were a singing sisters duo act from the 5th Season of America’s Got Talent. They ended up being eliminated in the finals. Listen to them sing once again despite their Cystic Fibrosis. This performance also caught Miley Cyrus’ attention (watch her…
In this 2011 video for the Cystic Fibrosis Foundation, watch Miley Cyrus talking how Cystic Fibrosis has touched her friend’s life. To learn more about Cystic Fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz …
Your CF Community
Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.